Language matters. Do you see the virus as a 'roommate' you didn't ask for, a 'battle' you’re winning, or just a quiet line item on your medical chart like blood pressure?
Answer Summary
Members described their relationship with HIV in deeply personal ways, ranging from seeing it as an unwanted but manageable roommate to simply... Read more
It's like a relative you do not really like much, but is part of your family and you cannot get rid of, you have to deal with the drama it causes, without letting it take over your life.
After 25 years, I'm happy to say that I'd describe our relationship as manageable, mutually respectful.
I feel it’s just part of my medical record but I do try to take care of myself by eating healthy and excercising. I pay attention to HIV treatments, as a matter of fact I suggested to my doctor on trying Biktarvy when I heard about. I sometimes wonder how long it may taken him to tell me about it. I suffer from kidney disease due to the early harsh HIV drugs and read about how o can take better care of myself. All this is empowering for me and I feel it’s helping cope and feel good about living.
It’s was hard having to explain to my grands I’m not going anywhere they worry every time I get sick cuz I nearly died when I was diagnosed now that I’m undetectable they worry just not as much they make sure I take my medicine but it’s something I wish they and I never had to go through