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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Adjusting To New HIV Doc Stressful Especially Being Long Termer:

Adjusting To New HIV Doc Stressful Especially Being Long Termer:

My former HIV/Internal Medicine doc suddenly retired due to personal reasons, but gave little notice and no referrals for patients. He like all my other physicians have alot of history with HIV and treating long term surivors. I saw the my new doc yesterday, after a long search, and a referral from one of my specialists. He is very young, nice, knowledgeable about all the medications. Especially the new state of the art one pill a day ones. But not very interested in my being a long termer… read more

A myHIVteam Member said:

I have changed ID doctors 3 times over the past 30 years of being treated for HIV. The first 2 were old timers who referred me to my next and then next ID doc. My current ID doc is young and always remains involved with my care and only specializes in HIV/AIDS treatment. I have been with doctor Chow since
2005 and only need to see him once per year with annual blood work.
I am thinking that us long term survivors no longer pose a challenge to the younger HIV specialists since we have effectively beat the condition back to manageable and undetectable levels granted as long as we take the meds and do self care.
Since you were instructed to make an appointment in 12 months, that is a good sign, and not necessarily a red flag, that you are healthy and need not stress over seeing the doctor less often than you were used to. Congratulations on reaching the level of once a year ID doctor visits and blood work as myself can attest to. Spending less time with my ID specialist is welcoming and it feels good knowing where I am at on this journey.
Never stress over good news but celebrate! Aloha John

posted 7 months ago
A myHIVteam Member said:

I have changed doctors over my 28 years of treating my HIV diagnosis, some of them were knowledgeable and very caring others treated you like a number and rushed you out of there office. I just keep reminding myself that I have a right to find the best person to help me on my journey with this disease. I'll experience many bumps in the road, but I should never stop caring for my health. This only benefits me and all those around me whom I care to have best life has to offer. Doctors especially new ones, need to remember bed side manners are just as important as knowing all other important medical procedures. We are all share same goal of maintaining a loving, healthy, and happy life with one another. Stay loving, healthy, happy my friends. Much hugs and love !!!!

posted 4 months ago
A myHIVteam Member said:

I change doctors often. Look for a doctor that is up to date on the latest medication and how to treat whatever is going on with in you. Keep changing doctors until you find that right one for you. It seemed you are “Seasoned” on the latest medications and treatment. Listen to that voice inside you. Majority of the time, that small voice inside you is not going to steer you wrong.

posted 6 months ago
A myHIVteam Member said:

My specialist for Infectious Dr is Dr. Preeti Kondal here in Oly - an exceptional doctor & I've met another infectious disease Dr in the same office who was there when I had dysentery in Jan - Dr. Steven Standaert
I've hopefully will have a new PCP in Aug, but have also experienced all of my meds being unfilled for several months except for my HIV (Biktarvy) & Acyclovir

posted 7 months ago
A myHIVteam Member said:

Great response and taken to heart. Thank you!

posted 4 months ago
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