Do You Feel Alone? | myHIVteam

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Do You Feel Alone?
A myHIVteam Member asked a question 💭

Has HIV had an effect on your social, personal, sexual or family life?.. Has it cost you relationships? Made you more reserved and distrusting of others, creating an atmosphere of loneliness in your life at times?

posted September 10, 2019
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A myHIVteam Member

I have never felt lonely or alone. I guess it is in my genetics. Even as a kid, I was always holed up in my room or walking in the woods, and rarely saw my parents or brother. I saw my Grandparents more than I did my parents (grandparents lived next door). My Grandparents would ask me what my parents were doing or going and I had no clue. I never had many friends in school either, maybe 5 or 6 the most. So being by myself is all that I have known. I do have a roommate now, and our schedules are different so don't see him as much either. I've just never had a need to be with someone, but would love to share my life with someone if it came to that.

posted September 15, 2019
A myHIVteam Member

My dad had a hopefully temporary catheter due to prostate cancer. As the tumour shrinks hopefully that’s history. On 24JUN he has cataract surgery which is a month of eye drops. End of nurse Rick.
I beat every medical precedent in surviving. ‘Where you were in 5 weeks we projected 8 years. Regardless of what was happening you were able to make your medical team smile. The situation for you is, you had a team of people giving you strength. The best and only solution for your long term health is to move away and restart surrounding yourself with people that understand the perplexity of your own well being’
My partner has been in my life as a friend first. He impressed my clinical nurse with his need to know about how HIV impacts me long term. He and my closest friend are running buddies giving his wife a moment to vent.

posted June 14, 2020
A myHIVteam Member

I have been positive for 27 years and I have, friends many who have passed. I tend to disagree with you... as you make a general statement about the gay community. We are the LGBT community and there are those long-term survivors that remember the Stonewall days.. We remember our friends and we still have those friends living amongst us. We are compassionate loving and supportive of each other's journey. I am sorry you have this impression of the gay community. But my friends, the LGBT community a world global community ..I am glad though that you have reached out here to us. This is our safe place and I hope you feel a part of this community. 🤗🤗🤗💙💜💚♥️❤️🧡💛

posted September 14, 2019 (edited)
A myHIVteam Member

Just read through all the responses so far. I'm proud to be part of such a positive group of "survivors". Yeah, the "loneliness" thing still hits me once in a while when I think about my biological family. Most of them felt they lost me when I came out as gay at 45! Their losing was THEIR choice, I have to say. I went for a while holding all their places OPEN in my life and EXPECTING them to fulfill their duty to me! Then someone only slightly older than my youngest son ROMANCED me into a relationship! So, I let my son go. I live in a world that allows ALL of us to make OUR choices. All of that taught me a very important lesson: I make my choices and you make yours. The ones who CHOOSE you are the ones to pay attention to. And MAKE YOUR CHOICES, too. I have a "chosen mommy", several "daddies" LOL, and even brothers, sisters, aunts and uncles. And I think I'm grandpa and maybe even great grandpa to a few. Life IS, and THAT is good!

posted September 10, 2019
A myHIVteam Member

Living with HIV is a challenge. I've found myself alone more than I wanted to be at times, but I have an AWESOME support system. I'm never really LONELY! It's important to be alright with yourself and the skin you're in!!!☺☺☺

posted September 10, 2019

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