I was diagnosed in 1987 living half my life with HIV. I am interested in connecting with people who are also Long Term Survivors. I have searched the site and have found quite a few. We are so few and far between it has been hard to find others who have been through the journey we have experienced. Having lost so many friends in the 80 's and 90's plus being diagnosed myself has made me feel survivors guilt and PTSD. Looking for others who have experienced some of the same and like to set… read more
Many feel the major culprits for Lipoatrophy, or loss of fullness in face. limbs, and rear, were the drugs AZT and Zerit. More are prone to Lipodystrophy, or visceral fat accumulation in your belly making it look bigger or fat accumulation in fat in upper back, who took Crixivan early on. As a long termer having had HIV 32 years I was on all three for quite a long time back in the 90's when med choices were few. And have both Lipoatrophy and Lipodystrophy in some shape or form. Wonder if… read more
Can you explain what both things are you're talking about?? I'm sorry for being ignorant, but i haven't heard those terms
I brush my teeth at least 3X a day. 2 years ago I started taking Intelence. I've noticed that my teeth have gotten considerably weak and some teeth have cracked or partially broken. I fear I will have to start wearing dentures. I am convinced that it's the medication. I am taking Intelence and Epzicon now and have been having a problem with weak and sensitive teeth. 3 have broken and 2 other have chipped. I don't know what to do...I don't have regular medical insurance. I've got… read more
There are offices that do take Medicaid & Medicare. I'm on that insurance and get regular checkups for my teeth. I had to research and look a for along time.
If so, how is HIV care differently where you are now, compared to where you were? This can be anything from medical care to housing, food or transportation.
I grew up in Toledo, OH up until almost 5 years ago, I haven't been a big difference between care in Chicago, except for the number of resources in the big city!
The Wall Street Journal: Gilead and Merck Join Forces to Develop Long-Acting HIV Treatment.
https://www.wsj.com/articles/gilead-and-merck-j...(Phone number can only be seen by myHIVteam users)?mod=flipboard
Have you ever read the pamphlet on your medications?
Some medications you can just take them without food.
Other medications you have to take them with food.
for the medications that you have to take with food do you know what kind of food you have to eat to make that drug work at its maximum?
Did you know that some HIV medications work better when you eat fatty foods?
It's important to read those pamphlets that come with the medications then you know how to actually take your medications.
I have no idea why or how but according to my viral load test my VL went from undetectable to 93. I have never missed my biktarvy. None of it makes sense.
My doctor mentioned possibly switching from biktarvy to something else to see if another medication would “jump start” my cd4. Now she may really want to since my VL is increasing.
Blips occur.I have had it happen and on retest was undetectable.