Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myHIVteam Member asked a question 💭
Newark, NJ
March 28
 · 
Reactions

Answer Summary

Members rallied around a question about what a medical case manager is and how to find one, with many sharing that the best first step is... Read more

Members rallied around a question about what a medical case manager is and how to find one, with many sharing that the best first step is simply asking your HIV doctor or clinic, as they can often connect you directly. Several members described how case managers help with transportation, specialty care, utility bills, rent, food vouchers, clothing, and navigating insurance, though services vary by location, income, and agency. A recurring theme was that resources like the Ryan White Program, local AIDS Resource Centers, and organizations in specific cities can be powerful lifelines, even as some members noted that funding cuts and location can affect what help is available.

A myHIVteam Member

Thank you for letting me know. Have a good day!

March 29
A myHIVteam Member

Yeah, just like you said 🥰 I have a medical case manager too, and their job is to help us with transportation or finding facilities that we need for specialty care to address whatever medical situations we may be facing along with the diagnosis of HIV. 👍😃Their job is also look for services that cater to the type of insurances that we have. 😄I hope that helps and I pray that you get everything you need. 😁Have a blessed and amazing Sunday you all.😇🌺😇🌺😇

March 28
A myHIVteam Member

It depends on what city you live in. I’m in Richmond so I have a medical case manager and a non-medical case manager I’m so that’s how I go to support groups. I’m so find out like when you go to the doctor and ask them. Do you have a medical case manager and it will tell you

March 28
A myHIVteam Member

Key HIV Medical Case Management Providers in Newark, NJ

FXB Center (François-Xavier Bagnoud Center): Located at 140 Bergen St, this center provides HIV testing, family-centered medical care, medical case management, home visits, and psychosocial support.

Peter Ho Memorial Center (Saint Michael's Medical Center): Known as a large HIV/AIDS treatment clinic, it offers case management, psychology, nutrition, substance-abuse counseling, and rapid testing.

Ryan White Program at University Hospital: Located at 185 South Orange Avenue (Medical Science Building), this program provides comprehensive HIV services and medical case management.

Hyacinth AIDS Foundation (The Wellness Community): Situated at 194 Clinton Avenue, offering wellness navigation, counseling, and social support services.

Broadway House for Continuing Care: New Jersey’s only specialized care facility for people living with HIV/AIDS, providing care coordination and social services.
These organizations focus on supporting individuals with HIV/AIDS through medical treatment and connecting them with essential community services.

March 29
A myHIVteam Member

@A myHIVteam Member, where ever you go to see your HIV doctor, ask them about a HIV medical Case manager. They will be able to set you up.
@A myHIVteam Member, I have private insurance as well, and I still have a medical Case manager. A lot of (but not all) the help they provide is based on income. The higher your income the less help you get. Other things are not based on income at all. For instance, my medical case manager told me about the HIV food pantry, which is not income based (well at least for my area, other areas could be different). They also assisted me in getting new free clothing for a job interview which was not based on income either. I have got help with paying my mortgage and utilities, that was based on income. My mortgage payment was covered 100% while my utilities was covered at 70%. Then I changed medical Case management to the other side of the state. They offered me free multivitamins, while the previous case manager didn't. So even different agencies in the same state offer different things. Pretty much if I need help with something, I send my medical case manager an email and say, hey, can you help me with this? Sometimes I get a yes, sometimes I get a no. Now with the Trump administration cutting funding for HIV grants, things might be changing. Maybe not as much help will be offered or maybe the help will be cut entirely. I haven't needed help in a while, but I may need it this summer when school is out for the season, and if Troy hasn't found a job by then.

March 29 (edited)

Related Questions

View All
A myHIVteam Member asked a question 💭
Hartsville, SC