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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myHIVteam Member asked a question 💭
Edmore, MI

I wouldn't say a word to nobody. The reason for that is, if you don't have time for me while I am here, then why change because you know my days are numbered? When the truth of the matter is tomorrow is not promised to anybody.

February 24
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Answer Summary

Members responded to the question of whether they would share a terminal diagnosis, with many expressing they would stay silent to avoid... Read more

Members responded to the question of whether they would share a terminal diagnosis, with many expressing they would stay silent to avoid gossip, judgment, or painful rejection. Several members shared deeply personal experiences, including one whose family responded with blame rather than support, and another who found unexpected community by openly sharing their status with neighbors. A recurring theme was the idea of chosen family, with many noting that their truest support often comes not from biological relatives but from friends, peers, and fellow community members living with HIV.

A myHIVteam Member

I wouldn't tell anybody what they're going to care for I would just try to enjoy my life to the fullest until it's time to go

March 1
A myHIVteam Member

@A myHIVteam Member indeed it seems really common here in our PLWH community that we form new families often composed of people who are not our biological relatives.

March 1
A myHIVteam Member

I am with you @ Xavier. I would never tell anybody. If we haven't spoken in a week, why should we speak when I am about to go?🤷🏽😁

February 25
A myHIVteam Member

Hi everybody I honestly think that is best not to say anything to anybody about the diagnosis it doesn't matter how much time you got here on Earth people are very strange only thing they're going to do is gossip about it not even talk or try to support you with anything.

February 25
A myHIVteam Member

understand what you meant in your post.
I actually told my older brother and sister about my diagnosis. I thought I would get support, but instead my brother said it was my fault and told me not to let our mom know. He said I should handle it myself and that I didn’t need to tell them.
That response hurt more than the diagnosis itself.
Sometimes the silence feels safer than rejection. But at the same time, we are still human… we still need support.
Reading your words made me feel less alone.

February 25

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