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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I have been struggling with lipodystrophy for many years. Is there support out there for treatment?

A myHIVteam Member asked a question 💭

I reacted to an HIV drug in 2004. This caused major facial muscle loss. As we know it is irreversible. At the time sculptra was offering free applications to HIV patients. They have not been for many years now. My face muscles have continued to weaken along with natural aging. I am 68 looking like 98. People are responding to me negatively and asking if I am ill, etc. It is interfering in my work and of course my social wellbeing. I am very depressed and am losing hope. Any ideas or knowledge… read more

January 4, 2025
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A myHIVteam Member

Thank you. This is a good alterative that I will look into. Was there a major cost for this?

January 4, 2025
A myHIVteam Member

Thank you, Xavier.
I hope you have a new year filled with peace.

January 4, 2025
myHIVteam

I'm sorry to hear about your struggles. While facial muscle loss from lipodystrophy is irreversible, there are still options to explore. Injectable treatments like Egrifta SV can help manage some effects of lipohypertrophy. Additionally, cosmetic fillers or facial implants may be an option, though they can be costly Show Full Answer

I'm sorry to hear about your struggles. While facial muscle loss from lipodystrophy is irreversible, there are still options to explore. Injectable treatments like Egrifta SV can help manage some effects of lipohypertrophy. Additionally, cosmetic fillers or facial implants may be an option, though they can be costly. Support groups like myHIVteam (url: https://www.myHIVteam.com/resources/hard-belly-...) can connect you with others who understand your experience and share advice. Please discuss these options with your healthcare provider to find the best path forward. ❤️

January 4, 2025

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