Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Español
Powered By
Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Can all of the long term survivors relate? Forty years a survivor

A myHIVteam Member asked a question 💭
Edmore, MI

Read more at this link:

https://www.aidsmap.com/news/jun-2021/forty-yea...

September 10, 2021
 · 
Reactions

Answer Summary

Members connected over the shared milestone of long-term HIV survival, with experiences ranging from 4 years to an inspiring 40 years,... Read more

Members connected over the shared milestone of long-term HIV survival, with experiences ranging from 4 years to an inspiring 40 years, offering hope and solidarity to newer survivors navigating their journeys. Several members opened up about the financial strain of copays ranging from hundreds to thousands of dollars monthly, survivor's guilt from losing friends during the AIDS crisis, and emerging health complications like kidney disease, liver issues, and fatigue that come with aging alongside HIV. A recurring theme was gratitude for how far treatment has come in transforming HIV from a death sentence into a manageable condition, balanced with acknowledgment of the ongoing mental, physical, and financial challenges that long-term survivors continue to face.

A myHIVteam Member

This is my 30th years old and it's a blessing to say that. It hasn't been easy ,as we all can relate. Yet ,I'm so grateful to my God for life pains /no pain,tired/energy. Learn to be patient with yourself. 🌹

September 17, 2021 (edited)
A myHIVteam Member

I have been HIV Poz since 1983. I am on Medicare Medicaid Humana and feel very lucky to have all my meds covered with a 3.50 copay. I live pay check to pay check and I have a section 8 apartment.

September 11, 2021
A myHIVteam Member

Wow. Forty years God Bless you. Gives me hope.Keep doing whatever your doing

September 10, 2021
A myHIVteam Member

26 yrs poz and undetectable!

September 19, 2021
A myHIVteam Member

I agree with many parts
Of the article mainly the mental health is extremely important. I hadn't experience what the author went through I was diagnosed in 1992 . I didn't see the deaths of the 70's & 80's . Although I have seen 1st hand what this disease can do. I did experience 2 weeks in the ICU on a ventilator with covid. I know 2 weeks in the hospital with covid is no comparison to AIDS but I got a small taste of fighting for life. However LONG TERM SURVIVER has a different meaning for me. I don't believe in luck or coincidence I believe in angels. I don't know everything but I'm open to learning. Thanks for the article and God bless

September 18, 2021

Related Questions

View All

Are you a long-term Survivor?

A myHIVteam Member asked a question 💭
Geneva, IL
June 8, 2022 (edited)

What are you doing to celebrate Long Term Survivor’s Day?

A myHIVteam Member asked a question 💭
Cincinnati, OH
June 5

Where are my fellow long term survivors/thrivers?

A myHIVteam Member asked a question 💭
Teaneck, NJ
January 4

Fatigue all day. Insomnia all night. Can you relate?
The Importance of Trusting Yourself
The Power of Letting Go of What You Can't Control