Many feel the major culprits for Lipoatrophy, or loss of fullness in face. limbs, and rear, were the drugs AZT and Zerit. More are prone to Lipodystrophy, or visceral fat accumulation in your belly making it look bigger or fat accumulation in fat in upper back, who took Crixivan early on. As a long termer having had HIV 32 years I was on all three for quite a long time back in the 90's when med choices were few. And have both Lipoatrophy and Lipodystrophy in some shape or form. Wonder if… read more
I have Stage 3 Chronic Kidney Disease. It came to light in 2008 when I had a battle with kidney stones and had surgery. Right now I'm stable with the meds and diet, but get very anxious every appointment with my kidney doctor afraid I have crossed over into Stage 4 and dialysis. Wondering if anyone has kidney issues from HIV or medications. Just want you to know you have support if you do.
Im newly diagnosed with HIV and am new to this site. I am curious, what was your intiail viral load when you first found out you were HIV+ (before starting treatment)? My results came in today and my viral load is 81,000.
I brought this up awhile ago, but just read an article in POZ or a journal that men with viceral fat have are 12% more likely have shorter lifespans than those that don't. Problem is, it is very hard to get rid of and get your BMI back to normal. Crunches don't do anything really. I have heard mainly exercise and special diet are the best. A friend said their are protocals for this either through medication, injections, or a procedure. Always wore a 30 to 31 waist up to age 55 and then… read more
Am new here..I take it 3tablets morning 3evening..its kind of too much.I hate it. Every time I visit the clinic I hope they combined it to one tablet..its not easy to move around with it when out of home or while visiting.. Its been 9 years with undetectable viral load of over 6years,its my second line
What's your experience and do you take this much
I experience migraines not everyday but in a month continuously like for a week I think its the side effects. If I miss my meds for a day ,I get… read more
Ive said before many times, the United States is far behind in HIV care
While the United States has just approved a monthly injection, I have noted Europe was doing a bimonhly study
The United Kindom (in Europe) has approved the first bimonhly injection.
The United States was behind the ball with U=U for 3 years.
The United States was behind in studying a monthly injection.
The United States is now behind in a bimonthly injection.
Sounds like the United States just doesn't care about HIV… read more
I am trying to wrap my head around what a real cocktail was in the past. When I received my HIV diagnoses in 2012 doctors put me on Atripla, a 3-in-1 pill, that very same day. I have not seen any TV show or movie explain what past cocktails where. In the movie Rent, they say "AZT TIME" but never really explain if that is a three times a day thing or 15 times a day thing. Even in the movie Dallas Buyers Club, they go through a list of the medicine but not dosages or dosing schedule. I believe… read more
I was diagnosed in 1987 living half my life with HIV. I am interested in connecting with people who are also Long Term Survivors. I have searched the site and have found quite a few. We are so few and far between it has been hard to find others who have been through the journey we have experienced. Having lost so many friends in the 80 's and 90's plus being diagnosed myself has made me feel survivors guilt and PTSD. Looking for others who have experienced some of the same and like to set… read more
During the last year my viral load has increased between 100 and 400 copies three times. After retesting all came back negative. I haven't had a viral load for years. Even with 100 copies before being retested my HIV doc was suggesting changing my meds. Has anyone else experienced this, or is currently carrying a viral load requiring a med change?
I remember back in the 90's it was difficult to get my viral load below 500,000 until I got on a Merck Crixivan Study. How different things are… read more