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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
June 30
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A myHIVteam Member

It's very hard to get disability on just HIV alone anymore. Usually you will need something else besides HIV to get it.

July 25
A myHIVteam Member

I was diagnosed with AIDS in February of 2013. I had pneumococcal pneumonia and my cd4s were 49 the amount of the virus in my bloodstream was close to millions. According to the Social Security administration HIV is not considered a disability unless you are basically in the AIDS status or if you can prove that the fact that you have it has prevented you from performing as you should at work. I know these things because I too have applied for disability based on my mental health capacity pertaining to my status and also because of some issues with my bones they denied my initial claim I appealed the decision they denied the appeal and I am now at the administrative law judge level to which I have a hearing in September I've done it all by myself and as it got closer my fear of being overwhelmed with all the information you have to provide and absorb I've hired an attorney. Technically a diagnosis of AIDS with cd4s 49 and an opportunistic infection such as pneumococcal pneumonia as well as the condition lasting more than 12 months would all fit for me however that was then and this is now I too would suggest if you're not familiar and not ready to study to get an attorney most of them will represent you without being paid until they win good luck

July 9
A myHIVteam Member

I personally have not applied for disability benefits. However from what I’ve heard the first time is always denied. Hopefully you appeal the decision.
However, it’s a blessing that you can still work. Hopefully you can work enough to pay your bills.

June 30
A myHIVteam Member

It's hard to get ssi while still working. You're trying to prove that you can't. I'd get an attorney. While at the same time building a solid file on yourself. Medical reports, employment write ups as a result of your condition.

June 30
myHIVteam

If a Social Security disability benefits application gets denied, there is a formal appeals process available. Here's what to know:

- You have 60 days from receiving the denial decision to request an appeal
- The decision will arrive both by mail and online
- At any point, you can call (Phone number can only be seen by the Show Full Answer

If a Social Security disability benefits application gets denied, there is a formal appeals process available. Here's what to know:

- You have 60 days from receiving the denial decision to request an appeal
- The decision will arrive both by mail and online
- At any point, you can call (Phone number can only be seen by the question and answer creators) (weekdays, 8 a.m. – 7 p.m.) to get help with your application or appeal During the appeals process, depending on the reasons given, the application could go through several stages:

- Reconsideration — the application is reviewed again
- Hearing — a judge reviews the case
- Council review — a higher council examines the decision
- Federal court review — the case is escalated to federal court It's also worth knowing that even if disability benefits are ultimately denied, there may still be other programs to explore, such as Medicare, Medicaid, or SNAP benefits. A patient navigator or social worker at a clinic can be a great resource to help navigate these options.

June 30

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