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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What are the physical effects living with HIV? What does that look like and feel like?

A myHIVteam Member asked a question 💭
New York, NY
May 13
 · 
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myHIVteam

Living with HIV can affect the body in many ways, and some of those effects can be surprising. Here's a look at what many people experience physically:

Common physical symptoms include:

- Persistent fatigue — A deep, unrelenting exhaustion that doesn't go away with rest, affecting both body and mind
- Weight changes — Show Full Answer

Living with HIV can affect the body in many ways, and some of those effects can be surprising. Here's a look at what many people experience physically:

Common physical symptoms include:

- Persistent fatigue — A deep, unrelenting exhaustion that doesn't go away with rest, affecting both body and mind
- Weight changes — Some people experience weight loss, while others on antiretroviral therapy (ART) may notice weight gain
- Nerve pain (neuropathy) — Burning, tingling, numbness, or sharp pain in the hands and feet
- Gastrointestinal issues — Ongoing diarrhea or stomach problems
- Muscle and joint pain — Including back pain and difficulty moving comfortably
- Skin changes — In advanced stages without treatment, sores or discolored spots may appear
- Hearing changes — Some people notice gradual hearing loss
- Night sweats and recurring fevers
- Swollen lymph nodes in the neck, armpits, or groin A myHIVteam member described the nerve pain as "brutal," while another shared feeling "excruciating pain in my lower back and the inability to walk without pain." One member noted that despite working out, eating well, and sleeping enough, "the low energy is constant."

It's worth knowing that many of these symptoms can also overlap with side effects from HIV medications, making it tricky to pinpoint the exact cause.

The good news is that most of these symptoms can be managed with the right support — whether that's medication adjustments, physical therapy, or talking openly with your healthcare provider. Don't hesitate to bring up any new or worsening symptoms at your next appointment.

May 13
A myHIVteam Member

Hello, greetings.
I could also add these symptoms, although they do not happen in every case and can vary depending on the individual:

Occasional fatigue
Greater sensitivity to stress or poor sleep
Mild metabolic changes
Slightly higher cholesterol or blood pressure depending on the treatment
Anxiety related to living with the diagnosis
Kidney or liver problems in some cases, sometimes related to years of medication use
Bone problems, such as loss of bone density or osteoporosis.

May 16

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