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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Let’s talk about 'Medical Fatigue.' How do you stay motivated?

A myHIVteam Member asked a question 💭
Edmore, MI

We all know the 'one pill a day' routine is a miracle of science. But let’s be real: sometimes, it’s just exhausting to be a 'patient' for 10, 20, 30, 40+ years. When the 'medical fatigue' hits and you’re tired of the bloodwork and the pharmacy calls, how do you snap yourself out of it? What keeps you invested in your long-term health when you just want a day off from thinking about it?

March 29
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Answer Summary

Members opened up about what keeps them going through medical fatigue after living with HIV for decades, sharing deeply personal sources of... Read more

Members opened up about what keeps them going through medical fatigue after living with HIV for decades, sharing deeply personal sources of strength and coping strategies. Several members described leaning on loved ones as their greatest motivation, including children, grandchildren, and supportive spouses, while others emphasized the importance of having a trusted doctor, a strong support network, and staying aware of available resources. A recurring theme was the emotional weight of long-term survival, from insurance battles and loneliness to grief, yet members found resilience in small daily wins, upbeat music, and a fierce determination to keep living.

A myHIVteam Member

Admittedly the relationship I had with my former id pcp made checkups bearable because well I liked her .

I mean she saw me as a poz patient and gave me the news that lifted a huge weight off my shoulders because she said " your Hiv posative you do not have Aids .

The schmuck of a dr that delivered the news when I was hospitalized with pcp said it plainly " you have Aids " on Christmas eve 1989 .

Now it does not get much more plain than that !

Hearing those words plus " you can go home today " sent me into a tailspin of epic proportions.

I denied the words for the next 2 years then decided
" dammit I am going to live not like the bastards that might have infected me who took the easy way out and died .

So I saw my id pcp 1990 when I got my first appointment until she retired in 2025 .

Our no holds barred relationship made it fun to go to a checkup ( well until it came to the facaca labs and being a pin cushion ! ) .

The new dr they brought over from pediatrics well she's just not used to dealing with " no nonsense old farts " like me so yes I am thinking of changing to an id pcp that I was referred to within the same system ( thank goodness becsusw HE will have access to my medical records when I make the meet and greet appointment to see if we get along before I make a decision .

March 29
A myHIVteam Member

I DONT really i just try and sleep

March 31
A myHIVteam Member

I find that it's important to just keep a particular view point - and for me a little upbeat music doesn't hurt.

That may not be an option for everyone - so the best I can say is always be aware of your resources! Who you can count on, who you can depend on, and who's there to pick up the slack when you can't - and never be afraid to ask.

March 30
myHIVteam

How can you manage medical fatigue and stay motivated with HIV treatment after many years?

Living with HIV for many years can make fatigue feel like a constant companion, but there are practical ways to manage it and stay motivated with your treatment.

Stay physically active

Even though exercise might feel like the last Show Full Answer

How can you manage medical fatigue and stay motivated with HIV treatment after many years?

Living with HIV for many years can make fatigue feel like a constant companion, but there are practical ways to manage it and stay motivated with your treatment.

Stay physically active

Even though exercise might feel like the last thing you want to do when tired, it's one of the most effective ways to reduce fatigue. You don't need a gym membership - walking, stretching, yoga, or tai chi can make a real difference. A myHIVteam member who's been living with HIV since 1985 shared that regular exercise helps them feel much better.

Listen to your body about rest

Balance activity with rest. Don't push yourself too hard, but also try to get your heart rate up when you can. Some days your body just won't be there, and that's okay. Practice self-compassion and give yourself the care you'd give someone else.

Improve your sleep routine

Go to bed and wake up at the same time daily. Keep your bedroom cool (around 65°F), dim lights before bed, and avoid screens for an hour before sleeping. Reduce caffeine and alcohol, especially 3-4 hours before bedtime. Eat a nutritious diet

A balanced diet helps reduce fatigue and prevents anemia, which can worsen tiredness. Proper nutrition also strengthens your immune system to help fight infections that contribute to exhaustion.

Address mental health

Depression, anxiety, and stress are common causes of fatigue in people with HIV. Talk with your doctor about screening and treatment options. They may refer you to a mental health specialist or recommend a support group.

Discuss medication side effects

Some HIV medications can disrupt sleep or cause vivid dreams and insomnia. If you think your treatments are affecting your energy levels, talk to your doctor about timing adjustments or alternatives.

Most importantly, keep taking your antiretroviral therapy as prescribed to maintain an undetectable viral load - this is the foundation for managing fatigue long-term.

March 29
A myHIVteam Member

I use mail in pharmacy meds are organized my husband is my support person he checks on me often my oldest daughter is a pca she says if you need anything call me if you get worse or older your not going to nursing home I can take care of you our grands is my motivation we have two grands on the way one in November by oldest daughter and one on the way in December by youngest daughter

May 7

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