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A myHIVteam Member asked a question 💭
Edmore, MI

OHSU-UCSF technology could open door to new treatment; people living with HIV may not need lifelong medications.
Read more here:

https://news.ohsu.edu/2024/08/08/study-single-e...

Study: Single experimental shot reduces HIV levels 1,000-fold
Study: Single experimental shot reduces HIV levels 1,000-fold
February 8, 2025
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Answer Summary

Members discussed promising new research on an experimental HIV injection that could reduce viral levels significantly, though many expressed... Read more

Members discussed promising new research on an experimental HIV injection that could reduce viral levels significantly, though many expressed skepticism about whether pharmaceutical companies truly want a cure given the high costs of current medications, which can range from $3,000 to over $14,000 per month. Several members shared concerns about recent federal funding freezes affecting HIV treatment programs like Ryan White and PEPFAR, worrying about future access to medications for both Americans and people worldwide. A recurring theme was personal treatment choice and success, with members sharing their own approaches including one who has thrived for 32 years with pills, exercise, and diet, and another who manages their HIV through monitoring rather than medication due to genetic factors.

A myHIVteam Member

Good morning family, I think you are mistaken. The colleague who says that the United States pays for medicines for people from other countries is wrong. In the case of Nicaragua, this is not the case. The Nicaraguan government assumes 100% of the purchase of these medicines, as well as the costs of tests and reagents for viral load and CD4. All of this as a sign of the restoration of rights contemplated in our constitution. At no time does the United States pay for my treatment. Maybe in other countries, but in my country it is not like that.
As for the question about injections, I do not agree with them. I always prefer my pills. I have been taking them for 15 years now, one tablet every night and I am calm. Needles make me nervous.

Buenos días familia creo que están en un error al colega que dice que estados unidos paga por medicamentos a personas de otros países en el caso de Nicaragua no es así el gobierno de Nicaragua asume el 100% de la compra de esos medicamentos al igual que asume los gastos por exámenes y reactivos para carga viral y CD4 todo esto como una muestra de restitución de derechos contemplado en nuestra carta magna en ningún momento estados unidos paga por mi tratamiento, tal vez en otros países pero en mi país no es así.
En cuanto a la pregunta sobre las inyecciones yo no estoy de acuerdo con ellas prefiero siempre mis pastillas llevo 15 años ya con ellas una tableta todas las noches y estoy tranquila las agujas me ponen nerviosa 😅

February 11, 2025
A myHIVteam Member

Gurl.. I've been doing just fine with my pills , exercise and diet. Going on 32 years here so I think I'm good for now. But thank you 💋💨💨💨💨☕👍❤️

February 10, 2025 (edited)
A myHIVteam Member

That’s outrageous, our medical system is such a rip off

February 9, 2025
A myHIVteam Member

Personally I don’t think they are looking for a cure , there’s just no money in curing people . Look at our maintenance meds now , mine are $3000 a month . They don’t want to give that up .
I’m speaking in America and I don’t know about any other countries

February 8, 2025
A myHIVteam Member

@A myHIVteam Member, in other countries they are free. The United States supplies the medications to them. So not only are we paying for OUR medication, but for others around the world as well. It's like we are buying ours plus 100 other people's meds so they can get them for free. If other countries paid for the meds instead of getting them for free, our cost would come down significantly. Pepfar, an organization that gave other countries the medications, was on the list of organizations that were put on the funding freeze by Trump.
Now if Trump is going to make it so that other people in the world can not get HIV medication, what will he do for us as well who need it? Ryan White is funded under federal grants that Trump is blocking.
By the way, your $3,000 a month is cheap! My cabenuva injections (the bimonthly HIV medication) are $14,431.00 or $7,215.50 per month.

February 8, 2025

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