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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
November 26, 2024
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Answer Summary

Members opened up about experiencing significant bone loss and dental issues, with many sharing that they've lost teeth, been told bone... Read more

Members opened up about experiencing significant bone loss and dental issues, with many sharing that they've lost teeth, been told bone doesn't regrow, and face challenges with implants or bridges due to severe deterioration. Several members offered practical insights, including that older HIV medications like Truvada and TDF are the primary culprits behind bone loss rather than HIV itself, leading some to switch to safer regimens like Dovato, while others emphasized the importance of calcium and vitamin D supplements, regular dental visits, and discussing medication changes with doctors. A recurring theme was the need to advocate for yourself with both dental and HIV specialists, ask questions about which medications may be contributing to bone loss, and make peace with the reality of managing these interconnected health challenges as part of living with HIV.

A myHIVteam Member

Yes! @A myHIVteam Member MyChart is a complete convenience in and of itself.

December 7, 2024
A myHIVteam Member

No, but I do have osteoporosis and osteopenia from HIV meds. I've been taking alendronate sodium for about 3 years now. I am due for my DEXA scan in December. Fingers crossed my bone density has improved and I can stop the alendronate.🤞

November 27, 2024
A myHIVteam Member

I am curious how well this has been studied. When I Google HIV and bone loss, that loss seems to be attributed to ARVs rather than HIV itself.

I have a visit with my HIV doc coming up a couple weeks from now, I'll ask him when I see him.

November 27, 2024
A myHIVteam Member

Bone loss here, and bleeding gums as I age; from even before I was infected with HIV. Not necessarily connected to our infection.

November 26, 2024 (edited)
A myHIVteam Member

I do have extensive bone loss and I have lost several teeth unfortunately. I've taken calcium supplements from now on hoping to keep what I have left. See if you qualify for a bridge because implants are extremely expensive and not always effective. Good luck my friend.

November 26, 2024

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