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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myHIVteam Member asked a question 💭
Barrie, ON

I am inquiring about going back to pills but my specialist told me that I can’t because the pill form won’t work as cabenuva is a liquid form and the other is pill. He also said that the pill form will not be effective enough to prevent it progressing to AIDS. The question I am asking is he telling the truth or not?

August 11, 2024
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Answer Summary

Members responded to concerns about switching from Cabenuva injections back to pills, with the overwhelming consensus being that transitioning... Read more

Members responded to concerns about switching from Cabenuva injections back to pills, with the overwhelming consensus being that transitioning back to oral medication is absolutely possible and that several members have done so successfully themselves. Many members encouraged seeking a second opinion or demanding a clear explanation from the provider, with some questioning whether financial incentives from pharmaceutical companies might be influencing the specialist's guidance and others noting that the injections are significantly more expensive than pills. A recurring theme was patient autonomy and self-advocacy, with members emphasizing that individuals should choose the treatment that best supports their mental health, comfort level, and overall wellbeing rather than feeling trapped in a regimen that causes anxiety or distress.

A myHIVteam Member

When I first started on Cabenuva I had to take 2 pills daily for the first 30 days the I did the injections. But after almost a year my viral load went back up again. So my doctor took me off Cabenva and put me on Symtuza which a daily pill. She told me that my strain of HIV was resistant to Cabenuva. With the pill it brought down my viral load again to being undetectable. Hope this helps!

August 11, 2024
A myHIVteam Member

Yes, you should consult with your Provider(s) about being able to switch back, but it is correct once you go on the Cabenuva Injection the pills will not work alone so you will have to get on some other medication as well.
Again, talk to YOUR Provider(s) and/or get a second opinion from another provider.

August 12, 2024
A myHIVteam Member

I have always used Descovy and Tivicay pills and I have always been undetectable and they work for me 💯

Siempre he usado pastillas Descovy y Tivicay y siempre he sido indetectable y me funcionan al 💯

August 13, 2024
A myHIVteam Member

@A myHIVteam Member I’m in the UK and on lead-in to get my first injections next week. I have already been advised that if there is an issue, or simply don’t like them, then I can switch back to tablets.
I know everybody is a unique case but if I - and others also here - can do it then I would certainly seek clarification or a second opinion.

August 13, 2024
A myHIVteam Member

@A myHIVteam Member I went back to pills after I stopped the injections

August 11, 2024

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