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A myHIVteam Member asked a question 💭
New Brunswick, NJ

I sometimes wonder if some people with HIV have given up. They are complacent.they say oh i will just take my once a day pill or every other month injection and be on my way. I will post videos and tell everyone around me I’m grateful and I’m not letting the virus bring me down. And I truly respect that. But that is a disservice to all those who fought and died so you can take your pill or injection and live a normal life .To me that’s a cop out and a stab in the back to groups like act up and… read more

August 1, 2024 (edited)
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Answer Summary

Members had a deeply emotional discussion about whether the HIV community has become too comfortable with current treatment advances, with... Read more

Members had a deeply emotional discussion about whether the HIV community has become too comfortable with current treatment advances, with some feeling the post was offensive while others strongly agreed with its message. Several members shared powerful personal stories, including surviving AIDS diagnoses in the 80s and 90s, losing close friends, participating in ACT UP marches, and crediting past activists and clinical trial participants for their survival today. A recurring theme was that honoring those who fought and died means staying educated, continuing to advocate, and never assuming the current state of treatment is enough.

A myHIVteam Member

I'm a newly diagnosed HIV Pos 2023, and I've taken care of plenty of people that have it since starting nursing in the late 90's. I've seen great changes in therapy and I'm greatful to those who came before us.
I now volunteer for my CAN Community Health and promote HIV education.

August 4, 2024
A myHIVteam Member

✌️❤️🌈

August 3, 2024
A myHIVteam Member

Please guys, dont fight each other on this platform. .Brad3 is only asking a Question. We are on the brink of World War Three, so please be kind to each other.

August 3, 2024
A myHIVteam Member

That's me. I take my pill and move on. Thank God. I remember when people used to take handfuls of pills and still looked like they had AIDS. It's not being complacent. It more like, thanks to the one pill a day, we have other things to do. Thankfully, I only think about HIV when I come on here and when I take my meds in the morning.

August 2, 2024
A myHIVteam Member

I don’t like to say but I feel rather patronised by your comments. These groups fought to get equal rights and recognition for PLWHA, and to further research into finding a cure.
To say that we are taking one pill a day and living a normal life is what they advocated for, as far as they could. This does not mean that we have forgotten those before us, that’s a bit offensive. I lost many friends to the virus and knew of many others, I have marched and fought for rights. I never forget this, I can’t.
We have healthcare, we have rights, we are known. Do we have a cure? I’m not going to speculate on that, but I did work in a Clinical Research Facility and know the amount of research that is going in the field. It is vast.
I am not HIV, HIV is not me. It is not my life, it’s a condition that I have. I have multiple comorbidities, I take numerous medications, I get on with it. I don’t dwell on it and let it take me over.
Remember that not everyone is the same, and not everyone is living equally, or equally as well. It is never good to generalise in these matters, let these people you refer to live their lives, you never know if that’s the only way they can deal with it.

August 1, 2024 (edited)

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