What Was Your Experience Receiving Your HIV Diagnosis?  | myHIVteam

Connect with others who understand.

sign up Log in
Resources
About myHIVteam
Powered By
Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
What Was Your Experience Receiving Your HIV Diagnosis? 
A myHIVteam Member asked a question 💭
posted March 1
View reactions
A myHIVteam Member

Picture it...Chelsea, NYC..Callen Lourde Health Center..1991...diagnosed with AIDS and Wasting..
Sitting alone on a chair, crying , being told i was seroconverting at that moment. With over 4 million plus copies of the virus in my system..I was put on antivirals immediately.

posted March 1 (edited)
A myHIVteam Member

I had my Dr run the test, just routine, got a call from his office that he wanted to see me. I went in and he told me I tested +. I did a mail in test, I was sure that his test was wrong. It came back +. I couldn't function, I cried all the time, took off 2 weeks from work. I broke up my relationship with a wonderful man, because I didn't want to poz him. I felt lost, scared and thought I was going to die soon. I didn't go on meds right away, until I had 600,000 copies in my blood. I should have never waited. I think that is the reason, I can not get to a "truly" undetectable level now. Here I am 22 years later.

posted March 2
A myHIVteam Member

I was shocked. But at the same time, I was relieved to find out why I was so sick. Hospitalized for 3 months with encephalopathy. Meds made me better. I figured I can't change what happened, no point dwelling on the past. Smile and look forward to the future. 😁🌞

posted March 1
A myHIVteam Member

I wasn’t really surprised when I was diagnosed. I already suspected due to weight loss, night sweats, etc.. However I will admit those three letters, HIV, kept echoing in my head. I couldn’t really hear what else my doctor said. I was in the AIDS stage when I was diagnosed, so I was terrified it might be too late. I told my husband, parents and siblings . They have been super supportive. I think my biggest fear was being rejected and dying alone. Now I am going to a Ryan White Clinic, taking my meds and doing very well. I’m glad I discovered this group especially since there is no local support group.

posted March 1
A myHIVteam Member

Well since my first test was negative cause I took the first test 3 weeks after exposure ,which was not enough time for my body to produce antibodies,to be positive. Second test 6 weeks later tested positive. My doctor 👨‍⚕️ and I will never forget this:he says look I’ve been treating people for 25 years for hiv consider yourself lucky you got it now. Take the damm pill once a day and you will die an old man.see you in 4 months and he walked out.he was abrupt but he made me feel better at least for that moment.

posted March 1

Related content

View All
What Is Life Like After Diagnosis?
A myHIVteam Member asked a question 💭
What Did You Think About HIV/AIDS Or People That Had HIV/AIDS BEFORE You Was Diagnosed?
A myHIVteam Member asked a question 💭
HIV DIAGNOSIS
A myHIVteam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in