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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Never claim anything until you have proof it's true

February 15, 2023
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Answer Summary

Members opened up about whether HIV medications can cause psychological and physical problems, with many sharing personal experiences of side... Read more

Members opened up about whether HIV medications can cause psychological and physical problems, with many sharing personal experiences of side effects like insomnia, depression, kidney damage, and bone density loss linked to medications like Truvada, Genvoya, and Biktarvy. Several members offered practical advice, including working closely with doctors to find the right medication combination, getting genotype testing, exercising regularly, eating well, and advocating for yourself if your doctor dismisses your concerns. A recurring theme was resilience and gratitude, with long-term survivors emphasizing that while side effects are real, open communication with medical providers and community support are key to living well.

A myHIVteam Member

Early on, the medications caused more side effects because they were less specific to the virus. Protease inhibitors had that problem. They inhibited human proteins along with viral proteins. At this stage, most of the meds that had those side effects are no longer in use. The meds now are pretty virus specific. They attack stages in viral replication that have no corollary in human cell replication.

February 16, 2023
A myHIVteam Member

There are a lot of theories and a lot of myths out there but it has been proven to be facts that the medication do affect your kidney and your liver enzymes. If you think about it the medications are chemicals that your body is not used to having it makes sense that there would be some side effects.

February 15, 2023
A myHIVteam Member

Thank you for your question. I had a number of complications stemming from Bad nightmares, insomnia, digestive disorder and insomnia ....in the early days of taking my medications. I worked diligently with my doctor along with his advice on a genotype test to help me determine which antivirals I had become immune to and which were causing me distress. I finally came up with the cocktail that I'm on today. What I would suggest is that you talk to your doctor about your quality of life from the side effects of these antivirals. You and you alone can decide this. If your doctor does not agree then replace him or her.❤

February 15, 2023 (edited)
A myHIVteam Member

I just wanted to add not only the actual pharmaceutical effects of these medications do have long-term effects such as kidney failure heart disease and so forth. That is unmistakably factual. But on the other hand I think some of us once we get diagnosed we lose hope and therefore exercise sexual appetite and the love of life fades. That is why it's so important that these venues such as this platform exist.

February 16, 2023
A myHIVteam Member

I have been living with HIV for 28yrs as far as for me after a certain time our HIV DR changes our meds due to after a while we become resistant to the meds I use to take 18-20 pills a day back in 1994 now I take one pill a day Davato came a long way but I have been on different meds. Blessings All 😇 IM ALIVE 🥰

February 15, 2023

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