Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Español
Powered By
Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do you rely on HIV services and funding in your state?

A myHIVteam Member asked a question 💭
Geneva, IL

A lot here on my HIV team are either retired disabled or currently working. Either way services like Ryan White and other AIDS funding helps with preventive and medical coverage. Some states like Tennessee(...read about it here, https://www.washingtonpost.com/health/2023/01/2... )...
have elected to refrain from receiving any federal HIV grants and funding. Would this affect you in your state,... if these Services were terminated?

January 26, 2023 (edited)
 · 
Reactions

Answer Summary

Members shared deeply personal stories about how essential HIV services like Ryan White, ADAP, and HOPWA are to their survival, covering... Read more

Members shared deeply personal stories about how essential HIV services like Ryan White, ADAP, and HOPWA are to their survival, covering everything from medication copays and housing to transportation and food assistance, with many emphasizing they simply could not afford life-saving antiretrovirals without this support. Several members described the practical reality of these programs, including six-month recertification requirements, income thresholds around $35,000, and how assistance helped during insurance denials or gaps in coverage, with one member recalling a $3,000 pharmacy bill that state funding immediately covered. A recurring theme was the profound gratitude for these programs as literal lifelines, coupled with fierce determination never to live in states that politically restrict access to HIV care, and heartbreak over loved ones lost when they stopped treatment or when services were unavailable in their countries.

A myHIVteam Member

Absolutely 🤗after years of working,.... unfortunately medical and Hospital insurance coverage is way into the $700 a month mark. Not to mention the cost of my antivirals. It is essential for me as a retired person that these Services continue which is why I moved to Illinois. I would never live in a state whose government dictates my health.

January 26, 2023 (edited)
A myHIVteam Member

@A myHIVteam Member - After setting yourself up for survival, with living space and medical care, you need something that gets you out of bed. Unless you are currently unwell, survival isn’t enough to keep you going, especially with an extended disease process like HIV. Without some excitement for life, self destruction can creep back into the picture. It seems crazy to survive an illness, only to let yourself be taken by something avoidable, but I’m sure it is a common story. Enjoy your grandchildren every chance you get, buddy.

January 29, 2023
A myHIVteam Member

I have Medicare ,plus Extra Help from SS also pays my part D insurance! Get hiv insurance assistance from state ,pays my BlueCross premiums!

January 28, 2023
A myHIVteam Member

I wish my country had such initiative for people like me.....we go through alot despite faking our smile....at times the free ARVs are unaccessible due to shortage....

January 9, 2024
A myHIVteam Member

With Ryan white services I believe the threshold is 35000 just do a Google check and you should be able to qualify for pharmaceutical assistance through Ryan white and some of your HIV medical receipts.
Your Union should offer you an overall Health plan as well.🙂😊

October 16, 2023

Related Questions

View All

Your thoughts? Feds cancel 5 University of Michigan HIV grants.

A myHIVteam Member asked a question 💭
Edmore, MI
March 26, 2025

Is HIV Considered a Disability? 4 Things To Know for Qualification
HIV-Negative Facts: Can You Get HIV if You and Your Partner Are Negative?
Alcohol and HIV: Your Guide
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In