Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Are You A Long-term Survivor?

A myHIVteam Member asked a question 💭
Geneva, IL

Being a long-term Survivor has its many setbacks. One of them being loneliness and feeling left out. With the new generation of Atriplas, many of us long-term survivors experience feeling forgotten.

June 8, 2022 (edited)
View reactions
A myHIVteam Member

Probably since 1984. Officially diagnosed in 1989. Fortunately in Los Angeles I belong to two LTS groups. We remember the past and support each other for the future. Last Tuesday I got a meningitis booster on my doctor’s recommendation. Just noticed the huge bruise on my shoulder a week later. There is an outbreak in Florida and I’m sure it will spread so I suggest you speak to your doctors about getting vaccinated or if you have been in the past, get the booster.

June 28, 2022
A myHIVteam Member

Let me let me start off by saying next week I will be 60 years old. That brings a lot of things to mind especially the fact that my elderly parents are the only source of support that I have other than my partner and my bulldog. My concern is their departure from this world. I have begun to think what I can do to help me through this tough time. I just needed to put it out there as I'm sure I'm not the only person who suffers from this.

June 8, 2022 (edited)
A myHIVteam Member

September will be 44 years that I have thrived with HIV. I've been undetectable over 15 years and my T-cells hover around 1,200

June 26, 2022
A myHIVteam Member

Good morning, i just want to say, as a “new member of the “community”” YOU WILL NEVER BE FORGOTTEN OR ALONE!!! Without the trials, tribulations and sacrifices you have made we wouldnt be here on this platfrom spreading LOVE (not hiv 😉🤣) we love you, we appreciate you, and we honor you! ❤️🧡💛💚💙💜🖤🤍🤎

June 11, 2022
A myHIVteam Member

I am a 20 year survivor. Years ago I wondered if I would ever make it this long. I have never been able to become completely undetectable. There is some type of resistance that they are unable to pin down to get me on the right medication to accomplish that. Hugs to all the other long term survivors out there and hugs to the new people, just do all the things you are supposed to do and you will be a long term survivor too!

June 9, 2022

Related content

View All

I Have Been Positive For 11 Years Now And Have An Incredibly High Cd4 Count And Have Always Had A High Cd4 1450+ Anyone Else Too?

A myHIVteam Member asked a question 💭

What Was Your First Thought?

A myHIVteam Member asked a question 💭
Geneva, IL

Can All Of The Long Term Survivors Relate? Forty Years A Survivor

A myHIVteam Member asked a question 💭
Edmore, MI