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Top 10 Search Results for "do other long termers have unexplained cognitive decline"

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If Others Couldn't Find Out Your HIV+ Status, Would You Get Involved With A HIV Organization And If So, What Do You Think You Would Do?
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A myHIVteam Member

Am I missing something? Why would working or volunteering with an organization that works with the HIV+ population mean that you are HIV+? Surely you don't think that only HIV+ people work or… read more

Do You Feel That If You Let Someone Know That You're Not Getting The Help You Need That Someone Stop You From Getting Services You Need?
A myHIVteam Member asked a question 💭
A myHIVteam Member

That's not always the case. But it is a rational fear of many people with hiv. But the more people with capabilities to help that know your needs, the better chance you are of receiving help.

How Do You Plan To Get Your Voice Heard About Prexisting Health Conditions?
A myHIVteam Member asked a question 💭
A myHIVteam Member

Text the word RESIST to 50409
That's a computerized letter generator. You can send a text, and it will ask you anything else.After each text. You will get prompts to continue. When your are fine… read more

Genvoya
A myHIVteam Member asked a question 💭

My neuropathy has calmed down from back in the day of all the "D" meds that triggered it in the first place. I will be switching to this med as soon as the Atripla runs out

A myHIVteam Member

Genvoya did help with the neuropathy, but it has killed my heart so I’m switching to Prezcobix. In my research I am finding that Emtricitabine is likely the culprit and unfortunately for me it’s in… read more

Sexual Side Effects Other Than ED Due To HIV Or Meds
A myHIVteam Member asked a question 💭

Ok, here's my question, I've been talking to my Dr about sexual side affects of HIV. I see thousands of post for ED, but does anyone else have any other problems? I know I have some kind of neurapathy that keeps me ever from c.........g But I never see anything on the topic. I never read of anyone complaining about it. Everything I read about the sexual side effects of HIV or the meds is vague.-anyone

A myHIVteam Member

My 30 years of it has given that side effect on a few different meds. Now the neuropathy has a series of effects and yes all the way to that region... It's not an easy target and Dr's aren't… read more

Talk About Our Experience In The Truvada Lawsuits
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A myHIVteam Member

No they are only interested in their percentage

How Long Do I Have To Live? How Long Before I Need A Wheel Chair
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I have been diagnosed with aids related neurological disorder. From what I can tell I am between stage 2 and 3. I began noticing the symptoms 4 years ago. Currently, I am having trouble walking straight, I'm also developing tremors. I am suffering from chronic pain from my legs. Also, I have noticed cognitive difficulties.

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A myHIVteam Member

There's no guarantee that will happen. It could get better or worse. Mine got better to a certain level. And has stayed there. Myself, I have HIV dementia proof home. I no longer use a stove, I… read more

Ever Get Tired Trying 2 Keep Up?
A myHIVteam Member asked a question 💭

I am - 30+ Q+As behind on -my HIVteam site +
my Facebook-[ my HIV/AIDS HEP C ] page. I am wundering if it is all worth the energy? I have been on -myHIVteam - 4 about 90 days, and still learning the system. I really have not kept up with my FB page. I have another new meds regime and will be looking to travel be4 this 2018 summer. Scholarships a hunting I am going. This has been another tough year. I still have 2 major calls be4 the year is out, and not looking 4ward to the 1 of the 2… read more

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A myHIVteam Member

It can be exhausting, but I try to read through the questions. I will say this, I don't allow it to rule me. Same as the disease itself. I've been positive for 30 years and occasionally I choose… read more

How Do You Stop The Hiv Related Neuropathy? I've Seen The Best Neurologists In The World, But It Won't Go Away. Any Suggestions?
A myHIVteam Member asked a question 💭

My docs have helped control the pain of that walking on cactus, but the tingling is maddening. From my numb feet to my chest, & from my fingers to my arm pits tingling 24/7. I've had several emg tests both locally and st johns Hopkins university. I wasn't given a lot of encouragement. I've tried homeopathic as well, but it doesn't help. I don't know if it's the longevity of my 29 years of hiv, long term antivirals or what and neither do my docs. I'm open to suggestions.

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A myHIVteam Member

My docs have me on an evenly high dose if that. 1200mg, 4 times a day. It helps but doesn't stop...

How Do You Maintain A Healthy Mental State As Well As A Healthy Status
A myHIVteam Member asked a question 💭

Sometimes in being HIV positive for longer than 10 years you learn how to put on a front a mask and before ripping the mask off you find your mental being discombobulated because of Shoulda Coulda Woulda and what would they think and what someone's expectations are and can you just be fine in your own HIV body .How not to become depressed how not to become withdrawn or alienate yourself @A myHIVteam Member. Sometimes different struggles and each level of longevity of living with HIV quite sure… read more

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A myHIVteam Member

I have my morning devotion with God and that starts off my day on a positive note. So therefore I'm healthy spiritually , emotionally and physically.