Am I missing something? Why would working or volunteering with an organization that works with the HIV+ population mean that you are HIV+? Surely you don't think that only HIV+ people work or… read more
That's not always the case. But it is a rational fear of many people with hiv. But the more people with capabilities to help that know your needs, the better chance you are of receiving help.
Text the word RESIST to 50409
That's a computerized letter generator. You can send a text, and it will ask you anything else.After each text. You will get prompts to continue. When your are fine… read more
My neuropathy has calmed down from back in the day of all the "D" meds that triggered it in the first place. I will be switching to this med as soon as the Atripla runs out
Ok, here's my question, I've been talking to my Dr about sexual side affects of HIV. I see thousands of post for ED, but does anyone else have any other problems? I know I have some kind of neurapathy that keeps me ever from c.........g But I never see anything on the topic. I never read of anyone complaining about it. Everything I read about the sexual side effects of HIV or the meds is vague.-anyone
My 30 years of it has given that side effect on a few different meds. Now the neuropathy has a series of effects and yes all the way to that region... It's not an easy target and Dr's aren't… read more
No they are only interested in their percentage
I have been diagnosed with aids related neurological disorder. From what I can tell I am between stage 2 and 3. I began noticing the symptoms 4 years ago. Currently, I am having trouble walking straight, I'm also developing tremors. I am suffering from chronic pain from my legs. Also, I have noticed cognitive difficulties.
There's no guarantee that will happen. It could get better or worse. Mine got better to a certain level. And has stayed there. Myself, I have HIV dementia proof home. I no longer use a stove, I… read more
I am - 30+ Q+As behind on -my HIVteam site +
my Facebook-[ my HIV/AIDS HEP C ] page. I am wundering if it is all worth the energy? I have been on -myHIVteam - 4 about 90 days, and still learning the system. I really have not kept up with my FB page. I have another new meds regime and will be looking to travel be4 this 2018 summer. Scholarships a hunting I am going. This has been another tough year. I still have 2 major calls be4 the year is out, and not looking 4ward to the 1 of the 2… read more
It can be exhausting, but I try to read through the questions. I will say this, I don't allow it to rule me. Same as the disease itself. I've been positive for 30 years and occasionally I choose… read more
My docs have helped control the pain of that walking on cactus, but the tingling is maddening. From my numb feet to my chest, & from my fingers to my arm pits tingling 24/7. I've had several emg tests both locally and st johns Hopkins university. I wasn't given a lot of encouragement. I've tried homeopathic as well, but it doesn't help. I don't know if it's the longevity of my 29 years of hiv, long term antivirals or what and neither do my docs. I'm open to suggestions.
My docs have me on an evenly high dose if that. 1200mg, 4 times a day. It helps but doesn't stop...
Sometimes in being HIV positive for longer than 10 years you learn how to put on a front a mask and before ripping the mask off you find your mental being discombobulated because of Shoulda Coulda Woulda and what would they think and what someone's expectations are and can you just be fine in your own HIV body .How not to become depressed how not to become withdrawn or alienate yourself @A myHIVteam Member. Sometimes different struggles and each level of longevity of living with HIV quite sure… read more
I have my morning devotion with God and that starts off my day on a positive note. So therefore I'm healthy spiritually , emotionally and physically.