What is one thing you like or dislike about living with HIV and managing other health challenges?
Living with HIV can bring a mix of emotions — some days feel like the top of a rollercoaster, full of clarity and strength, and other days can feel like a steep drop into worry or depression. Many people find that experience Show Full Answer
What is one thing you like or dislike about living with HIV and managing other health challenges?
Living with HIV can bring a mix of emotions — some days feel like the top of a rollercoaster, full of clarity and strength, and other days can feel like a steep drop into worry or depression. Many people find that experience very relatable.
One myHIVteam member described it this way: living with HIV is like a rollercoaster — some days you feel on top of the world, and other days the low points bring depression creeping in.
Things people often dislike:
- The emotional toll — anxiety, depression, and fear
- Stigma from others who don't fully understand HIV
- The impact on work, relationships, and daily life
- Feeling like loved ones don't truly "get it" even after explaining
Things people sometimes find meaningful:
- A deeper awareness of their own health
- Building stronger connections with others who truly understand
- A renewed sense of self-worth and resilience
- Becoming more educated and empowered about their health
One silver lining a myHIVteam member shared was that their diagnosis pushed them to drop assumptions and truly appreciate life day by day.
Everyone's experience is unique — what's yours?
12 hours ago
well my fear of catching HIV is gone-lol
7 hours ago
I guess a possible "LIKE" would be that it forced me to make medical care a priority.
11 hours ago (edited)
I don't look at it in the terms like/dislike. I look at it as having gained knowledge (for good or not so good). Finding out that I am Poz set me on a path to keep an eye on my health. Learning what my body is trying to tell me so that I pay attention to it.
There is one thing that i pretty much dislike is the fact that I had to have open heart surgery in March 2025. The left main artery was 50% blocked. But now I am a survivor not only of HIV but open heart surgery and those are my super powers.
11 hours ago