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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Upper Left Collar Bone Lump and CT Scan

A myHIVteam Member asked a question 💭
Barrie, ON

Okay, my question is about my upper left collar bone lump. I recently had a CT Scan of the lump but the doctor said that they found no tumors in it but the lump is growing fast and it feels bumpy. What does this mean for my HIV and overall health and what should I do?

July 16
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Reactions
A myHIVteam Member

could be HIV Elephantitus Syndrome. I would ask about a transplant...

July 17
A myHIVteam Member

It is likely a Lipoma. Ther little cells of fatty tissue n calcium deposits that form anywhere on ur body. The more u hav removed, the more ther are n they come back faster. Ther not anything to be concerned with. They can be painful at times but don't cause any serious health issues. Did the dr do a biopsy of the lump to be sure its not cancerous? They can be removed if its a Lipoma but its really a big waste of time.😉

July 16
myHIVteam

A growing, bumpy lump near the collarbone that's changing quickly is definitely something worth taking seriously, especially when living with HIV. Even though the CT scan didn't show a tumor, that's reassuring but not the full picture.

The lump could be a swollen lymph node. People living with HIV can experience swollen Show Full Answer

A growing, bumpy lump near the collarbone that's changing quickly is definitely something worth taking seriously, especially when living with HIV. Even though the CT scan didn't show a tumor, that's reassuring but not the full picture.

The lump could be a swollen lymph node. People living with HIV can experience swollen lymph nodes as the immune system responds to various triggers. However, because HIV can affect how the immune system functions, any unusual or rapidly changing lump deserves close follow-up. Here are some important next steps to consider:

- Request a biopsy — A CT scan rules out certain things, but a biopsy can give a much clearer picture of what's actually happening inside the lump
- See a specialist — Ask for a referral to a hematologist or oncologist who has experience with HIV patients
- Track changes — Note how fast it's growing, whether it's painful, and any other new symptoms like night sweats, fever, or unexplained weight loss
- Keep your HIV care team informed — They need to know about this so they can factor it into your overall care plan

Don't let this sit without answers. Pushing for more investigation is absolutely the right move here.

July 16

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