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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

A alguien más le sucede esto:

A myHIVteam Member asked a question 💭
Lima Per

After the diagnosis, I don't want anything to do with relationships anymore. They terrify me. I don't trust anyone anymore; I'm scared, and I've completely withdrawn from social life. I deleted my social media accounts and disappeared. Only my aunt and my brother, who sometimes asks about me, know about me, but I've completely lost the desire to socialize, go out, and meet people.

Después del diagnóstico ya no quiero saber nada de pareja me aterra ya no confío en nadie tengo miedo y me alejé de la vida social por completo eliminé redes y me hice humo solo saben de mi mi tía y mi hermano que aveces pregunta por mí pero las ganas de socializar salir y conocer gente las perdí por completo

May 19 (edited)
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Answer Summary

Members responded with deep empathy to a question about withdrawing from relationships and social life after an HIV diagnosis, with many... Read more

Members responded with deep empathy to a question about withdrawing from relationships and social life after an HIV diagnosis, with many sharing that this kind of isolation is a very common and understandable reaction. Several members described going through similar phases, explaining that the mind and body go into a protective mode after a life-changing diagnosis, but that with time, most found their way back to connection and a more hopeful outlook. A recurring theme was the encouragement to focus on treatment, self-care, and trusted loved ones first, with many reassuring that life can still be full and meaningful after diagnosis.

A myHIVteam Member

Patricia, you are one of them…..a strong female, independent, a human being that can and does this for herself. It is very true….how do you trust anyone ever moving forward? How? That word “trust” it’s given away so so many times in a day you don’t realize it. I like you Patricia….i don’t trust, it seems as though everyone is out to get something for free or make a buck off your back, at what cost? At the cost of ….trust. It’s been 31 years since I was given HIV, yes this sounds crazy, but I thank God for the disease for in Christ all things are possible. . For the good AND the bad in my life. That if one person does not get HIV because they know I have it, then that’s ok with me. I have started to trust……only 2 people on the face of this earth do I trust, Joey and Michael, two very close and dear friends. But you know…there is much more that I trust everyday. I trust the food is safe at the restaurant , I trust my car will start when I need it. I trust that when people read my story they will stop and think…..you never lose “trust “ in people, you are very cautious. May God bless you reading this so much so they your cup runneth over. Anen

June 16
A myHIVteam Member

Hi Patricia, I completely understand. The same thing happened to me, and I'm talking about 30 years ago. My advice is to go back to the life you had before. If you're undetectable, there's no problem. You don't have to tell anyone if you don't feel safe. Don't let this control your life. Go out, live, and enjoy life, which is beautiful, and love even more so. Don't close yourself off to new relationships. Nowadays, most people are very aware of this issue. I've had a serodiscordant partner. Sending you lots of encouragement and a hug.

Hola Patricia,te entiendo perfectamente,a mí me pasó lo mismo,y te hablo de hace ya 30 años que llevo con esto,mi consejo,esque vuelvas a retomar la vida que llevabas antes,si estás indetectable no hay problema,no tienes porqué contar esto a nadie si no te sientes segura,no dejes que esto maneje tú vida sal vive y disfruta de la vida que es muy bonita y el amor más no te cierres a nuevas relaciones,hoy en día la mayoría de la gente está muy concienciada con este tema,yo e tenido pareja serodiscordante,mucho ánimo un abrazo

June 7
A myHIVteam Member

PatriciaCamposMillan Okay, I understand you completely… something similar happened to me, but in my case it was so intense that I stopped talking to everyone, I lost the desire to go out, work, socialize, and even seek help. I didn't want to see doctors or listen to anyone, only my family, and otherwise I completely isolated myself.

I think that when you experience something so sudden, your mind and body go into protection mode and you end up isolating yourself unintentionally. Sometimes it's not even sadness, it's more fear, shock, or not knowing how to handle everything you're feeling.

Over time I understood that when you go through something that emotionally shatters your confidence or peace of mind, your body and mind react by withdrawing from everything to "protect" themselves. And although it feels horrible, it doesn't mean that anything is wrong or that you're going to stay like that forever; that's how our mind reacts.

And although it feels impossible now, little by little you learn to live with it and you find yourself again in your own time.

PatriciaCamposMillan ok Te entiendo muchísimo… a mí me pasó algo parecido, pero en mi caso fue tan fuerte que dejé de hablar con todos, perdí las ganas de salir, trabajar, socializar e incluso de buscar ayuda. No quería ver médicos ni escuchar a nadie, solo a mi familia y por lo demas me aislé por completo.
Creo que cuando uno recibe algo así tan repentino, la mente y el cuerpo entran en modo de protección y uno termina aislándose sin querer. A veces ni siquiera es tristeza, es más el miedo, el shock o no saber cómo manejar todo lo que estás sintiendo.
Con el tiempo entendí que cuando uno pasa por algo que le rompe emocionalmente la confianza o la tranquilidad, el cuerpo y la mente reaccionan alejándose de todo para “protegerse”. Y aunque se siente horrible, no significa que algo este mal ni que vayas a quedarte así para siempre, asi reacciona nuestra mente.
Y aunque ahora se sienta imposible, poco a poco uno aprende a convivir con eso y vuelve a encontrarse consigo mismo a su tiempo

May 27
A myHIVteam Member

When i lived in a smaller community. Word got out. No one would have anything to do with me on a relationship basis. However, I was able to secure s few friends. Hopefully you can do the same secure a few friends.

May 19
myHIVteam

Is it common to withdraw from relationships and feel afraid to connect with others after an HIV diagnosis?

Yes, this is very common and completely understandable. Many myHIVteam members have shared similar feelings: fear, mistrust, and the desire to isolate themselves after diagnosis.

One myHIVteam member shared: "Since Show Full Answer

Is it common to withdraw from relationships and feel afraid to connect with others after an HIV diagnosis?

Yes, this is very common and completely understandable. Many myHIVteam members have shared similar feelings: fear, mistrust, and the desire to isolate themselves after diagnosis.

One myHIVteam member shared: "Since 2011, I've been so afraid to have relationships again. I know it's an important part of life, but the fear is SO OVERWHELMING." These feelings are a normal reaction, but you don't have to get stuck in them. Some things that can help:

- Prioritize your mental health before thinking about relationships
- Seek support from a therapist or counselor specializing in HIV
- Surround yourself with supportive people who accept your diagnosis
- Remember that many people live fulfilling and satisfying relationships while living with HIV

The fear of rejection is real, but so is the possibility of finding acceptance and genuine love. You are not alone in this. 💙

¿Es común alejarse de las relaciones y sentir miedo de conectar con otros después de un diagnóstico de VIH?

Sí, esto es muy común y completamente comprensible. Muchos miembros de myHIVteam han compartido sentimientos similares: miedo, desconfianza y el deseo de aislarse después del diagnóstico.

Un miembro de myHIVteam Mostrar respuesta completa

¿Es común alejarse de las relaciones y sentir miedo de conectar con otros después de un diagnóstico de VIH?

Sí, esto es muy común y completamente comprensible. Muchos miembros de myHIVteam han compartido sentimientos similares: miedo, desconfianza y el deseo de aislarse después del diagnóstico.

Un miembro de myHIVteam compartió: "Desde 2011 he tenido tanto miedo de volver a tener relaciones. Sé que es una parte importante de la vida, pero el miedo es MUY GRANDE." Estos sentimientos son una reacción normal, pero no tienes que quedarte atrapado en ellos. Algunas cosas que pueden ayudar:

- Priorizar tu salud mental antes de pensar en relaciones
- Buscar apoyo de un terapeuta o consejero especializado en VIH
- Rodearte de personas comprensivas que acepten tu diagnóstico
- Recordar que muchas personas viven relaciones plenas y satisfactorias con VIH

El miedo al rechazo es real, pero también lo es la posibilidad de encontrar aceptación y amor genuino. No estás solo/a en esto. 💙

May 19

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