What would be something you would like to see implemented with your infectious disease doctors office in maintaining your linkage to care that would make things better?
This could be having a trusted employee that you can rely on, this could be how the office engages with you, this could be your ID team collaborating with external stakeholders (ASO, Pharmacy....) or how you see your Infectious Disease Doctor (Telehealth) - what change would you like to make happen to make things better for you… read more
Answer Summary
Members responding to a question about improving HIV care retention shared a range of ideas, with a strong theme being the need for... Read more
I go to Northwestern Memorial Hospital in Chicago that is rated the best in the nation. Even though we still have great medical care here in Illinois there are people like phlebotomist, nurses aides and even some nurses that are still uneducated about the stigma of HIV. I hope Michael that through outreach and education in our neighborhoods we can reach the younger generation and teach them that HIV should not be feared rather accepted and treated.
I love my HIV care team - one of the best in the nation and highly involved in research! Trust and connectedness is important and I feel so valued by the entire team! University of Cincinnati is top notch and playing a huge role to eliminate HIV - the capability to end HIV is here !
We meet twice a week for lunch personals and food pantry been going there thirty years they all work together I've seen a lot of friends die over the years some even worked at my AL post I wish everyone could be cured I wish I didn't have HIV toxic polyneuropathy or unknown toxin in my muscles I'm dying a slow death all my doctors are being to nice by weekly infusion now I'm tired of it more muscle biopsy arms and legs mite just say no this time
I can reach nurse and ID doctor 24/7 via the portal Monday - Saturday 7 am to 5 pm walk in 5 pm - 11 pm clinic Monday - Saturday and tela health 24 24/7 and my case manager in an emergency
Here in the UK I would like a doctor whose first language is English and who relates to patients in the general British way. What I'm stuck with is a doctor who speaks broken English, who does not enunciate clearly, whom I cannot always understand, and who does not interact
and communicate with even the slightest amount of warmth and empathy. I lodged a formal complaint and was subsequently advised that due to the UK's shortage of doctors there was/is nothing which can be done.