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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
January 16, 2025
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A myHIVteam Member

I had 1 when they were trying to DX my encephalopathy. Negative. The Dr's tested everything. Lastly HIV. I guess I didn't fit the typical stereotype. I don't remember how it felt though.

January 18, 2025
A myHIVteam Member

It's the 2nd time a doc recommend it. Different doc this time. My numbers have been really bad the last couple years. I'm responding well to medication, undetectable. I don't think a spinal tap is necessary, just no immune system. I believe its medication side effects. My cd4 has been between 45-49 last couple of years.

January 16, 2025
A myHIVteam Member

Wow I have not but it does not sound good. Please get a second opinion and take your husband with you 🌈🌈🌈🌈❤️

January 16, 2025
A myHIVteam Member

I’ve had a few lumbar punctures done.

They are uncomfortable for sure. The procedure usually goes fast. I was sore for a couple of days afterwards.

The first time one was performed was because I had an infection the doctors could not figure out the cause. They took some fluid out of the spine, examined it and were able to pinpoint the cause of the infection.

They are a great tool for the doctors to better understand what’s going on inside of you.

Good health to you.

January 16, 2025 (edited)
myHIVteam

A lumbar puncture (spinal tap) is sometimes recommended for people with HIV who experience severe or unexplained headaches. It helps doctors check for infections, inflammation, or other issues in the nervous system. While the procedure can be uncomfortable, it’s generally safe. If you're nervous, talk to your doctor about Show Full Answer

A lumbar puncture (spinal tap) is sometimes recommended for people with HIV who experience severe or unexplained headaches. It helps doctors check for infections, inflammation, or other issues in the nervous system. While the procedure can be uncomfortable, it’s generally safe. If you're nervous, talk to your doctor about what to expect and how to manage any discomfort. It’s important to address headaches, as they can sometimes signal serious conditions.

January 16, 2025

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