Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myHIVteam Member asked a question 💭
Geneva, IL

Sometimes HIV causes us to isolate. The winter time makes it even worse. Do you feel isolated from events or social gatherings due to the stigma of being called out for being HIV positive.
Does it come into play when you socialize?

January 12, 2025
 · 
Reactions

Answer Summary

Members opened up about social activity and isolation after an HIV diagnosis, sharing a wide range of experiences from becoming more outgoing... Read more

Members opened up about social activity and isolation after an HIV diagnosis, sharing a wide range of experiences from becoming more outgoing to feeling deeply homebound. Several members described how stigma, financial hardship, weather, anxiety, and health concerns all played a role in limiting social connection, while others found ways to stay engaged through work, family traditions, volunteering, or simply dining out alone as self-care. A recurring theme was learning to live on their own terms, finding peace in small circles of trusted loved ones, and recognizing that their diagnosis does not define their worth or joy.

A myHIVteam Member

I like to socialize, but i'd rather be the fly on the wall that people don't see than join in the activities.

January 13, 2025
A myHIVteam Member

I am very much home bound since I was diagnosed. One fear I can't see to shake it getting with the flu and then having complications😤

January 12, 2025
A myHIVteam Member

It is not HIV that causes me to isolate myself, but rather social anxiety and low self-esteem caused by child abuse.

However, it is something that I am actively working on and know that I need to do because socializing is just as important to overall health as taking care of your mental health and physical health. This is something that science has proven.

Also, 1/3 of older adults feel lonely. Aging doesn't help at all when it comes to having a social life. As we get older we become less seen so to speak. We also start losing friends through death. We lose partners as well.

I have joined a social group, but due to being on a fixed income and not being able to afford my own transportation, I don't get to participate in as many activities with the group as I would like. But as my financial situation improves, I'm looking forward to putting myself out there and becoming involved. I would also like to volunteer, which is a fantastic way to socialize and contribute at the same time.

January 13, 2025
A myHIVteam Member

I have always been a "home-body". I am out and about for work, so evenings and weekends are usually at home. I would not consider myself "isolated". I teach an improv class, I have an improv troupe and I act when I have time (just had a gig this weekend). I have tried not to let HIV run my life. I am very careful about my health so try to avoid big crowds. I was diagnoses during Covid, so I had to isolate. Plus, I went I to Counseling right away, so that helped.

January 12, 2025
A myHIVteam Member

Now I became more active after my diagnosis and I'm social butterfly

January 12, 2025

Related Questions

View All
A myHIVteam Member asked a question 💭
Bogota, NJ

A myHIVteam Member asked a question 💭
Edmore, MI