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A myHIVteam Member asked a question 💭
Geneva, IL

HIV can be controlled by antiviral medication.
Do you see HIV as a terminal disease or a disability or something else?

October 23, 2024 (edited)
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Answer Summary

Members shared deeply personal perspectives on whether HIV should be considered a disability, with responses ranging widely based on... Read more

Members shared deeply personal perspectives on whether HIV should be considered a disability, with responses ranging widely based on individual health journeys and the era in which they were diagnosed. Several members who have lived with HIV for decades described lasting complications from early medications, including severe peripheral neuropathy, kidney and liver problems, vision loss, and chronic fatigue, with many noting they now rely on disability benefits after years of trying to work through debilitating symptoms. A recurring theme was that while modern antiretroviral therapy allows many newly diagnosed individuals to live relatively normal lives, those diagnosed in earlier eras or who developed AIDS-defining illnesses face ongoing physical limitations, systemic discrimination, and the psychological burden of stigma, leading most to agree that HIV itself may not be disabling but its complications and societal impacts often are.

A myHIVteam Member

Absolutely nothing but the truth.😘👑♥️🌹

October 26, 2024
A myHIVteam Member

Im classed as having stage 3 to 4 HIV. And I have previously had two AIDS defining illnesses. Therefore I would be considered disabled by the State. I am also considered to have a terminal illness, since my virus caused considerable Brain damage and any interuption of my treatment would bring death very very quickly. However, the dying process has been halted, and a lot of the Brain damage has been reversed since 1996, only whilst I continue with my current 3 different classes of antiretrovirals. I must say it does feel very very odd to be nearly 66 years old, given I planned for my death in 1996 at the age of 37.

October 23, 2024 (edited)
A myHIVteam Member

I think those who are detected and treated early enough are fine. They are the lucky ones. Then again, look at my situation where I was diagnosed with HIV in 2009 and by 2012 I am filling out my will on my deathbed from AIDS which has disabled me. Its a fickle thing if you ask me.

October 23, 2024
A myHIVteam Member

I see HIV as a debilitating disease, but the extent of debilitation is individual based, the worst part of having this disease is the stigma and the blow to self esteem which can lead to depression and anxiety. This disease is for the most part manageable, but again depends on the extent the disease has evolved.

October 25, 2024
A myHIVteam Member

HIV, no. Advanced HIV or AIDS, yes.

October 24, 2024 (edited)

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