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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Grindr Lawsuit

A myHIVteam Member asked a question 💭
New Brunswick, NJ

News has it that Grindr is being sued in the UK for allegedly sharing users HIV status to third parties. Makes me wonder if that would make people hide there status in there profile because of this which could be a big problem with HIV spreading. Not to mention HIPPA laws being violated .I received this information on Poz magazine website. Is the USA Grindr app next?

May 2, 2024 (edited)
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Answer Summary

Members discussed the Grindr lawsuit regarding alleged sharing of users' HIV status, with many expressing concern that privacy breaches could... Read more

Members discussed the Grindr lawsuit regarding alleged sharing of users' HIV status, with many expressing concern that privacy breaches could push people to hide their status and increase HIV transmission risks. Several members emphasized that HIPAA only applies to healthcare workers, not dating apps or personal disclosure, and stressed that once status is shared publicly on a profile, it's no longer protected information. A recurring theme was the tension between personal privacy, corporate responsibility, and the reality that people often lie or omit information online regardless of platform policies, with members advocating for caution, honest communication, and holding companies accountable for profiting from sensitive health data.

A myHIVteam Member

7I said what I did previously because I too have " skirted around" truth to prevent others from getting nosey and trying to " dip into my kool-aid " for details .
Claiming the status of disability gives folks reason to feel the need to probe for answers when they should only accept the facts based on face value .

Well after having been supported by my late husband if I did not go back to the " full time 40 week stichick " and I turned old enuf ( age 62 ) and knowing that was the age to claim " early retirement" opted for that " title " to avoid the endless myrid amount of questions about how I support myself :) .

May 3, 2024 (edited)
A myHIVteam Member

Indeed. I really want to meet my fellow poz folks in person although I have been appreciating our community here. Given opportunity I would love to share a meal with any of my team here.

May 2, 2024
A myHIVteam Member

Yep! It don't matter they still going to lie even if they do.

May 2, 2024
A myHIVteam Member

People will certainly lie about themselves. Caveat emptor. Divulging your HIV status, outside of all HIPAA laws, is entirely up to you. Any results or responses is due to your (poor) judgment and no one else’s. The responsibility lies in your honesty, not the perception of someone else.

May 3, 2024
A myHIVteam Member

I think that people by x or y always go at first hide that for fear of rejection I think the best thing would always be to talk about things and always take care of the other person because it's okay that you don't tell it but at least be careful with that person take care of him.

May 2, 2024

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