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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Should the term "AIDS" be retired? I think @A myHIVteam Member

A myHIVteam Member asked a question 💭
Sierra Vista, AZ

Should the term "AIDS" be retired? I think @A myHIVteam Member might have mentioned this, but this is the first time I've seen it on Medscape.
Is AIDS just advanced HIV infection, or would eliminating the term give the impression that it's no longer a problem?

April 14, 2024
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Answer Summary

Members had a rich and personal conversation about whether the term 'AIDS' should be retired, with many sharing confusion about whether... Read more

Members had a rich and personal conversation about whether the term 'AIDS' should be retired, with many sharing confusion about whether recovering T-cell counts means reverting from an AIDS diagnosis back to HIV-positive status. Several members shared that their doctors no longer use the term, preferring 'advanced HIV,' while others felt the label AIDS carries harmful stigma that makes people seem 'dirty' or at fault, and preferred thinking of it as a chronic illness like diabetes or cancer. A recurring theme was the tension between updating outdated medical language to reflect modern treatment success and honoring the history of those who died before effective medications existed.

A myHIVteam Member

What does Aids really mean for all of us, its just Acquired Immune Deficiency, its just that but people make it sound and make it seem like its so degrading, i don't like the sound and the term for one reason because the way people interpret this when they don't know and understand what it really means, in the community i live in i have heard people speak about it with no knowledge whatsoever about it and makes one feel hopeless, the way they use the term and the feelings associated with it has if its so disgusting , its just an immune disease, after all we know what it looks like and how it diminishes your immune system, even so i also don't like this word. Somehow it sounds low and degrading, and people still have no respect for anyone living with it and have judged too soon. I , always am not afraid to correct someone because some people don't know the difference between H.i.v and A.i.d.s. And yes i also would like the term removed. In a small community you hear people talk all kinds of nonsence without understanding. I like to understand it as just another chronic illness, like lupus, cancer, heart disease, diabetes.

April 14, 2024
A myHIVteam Member

As I mentioned before,
HIV is the virus.
AIDS is a condition.
2 different things.
You can have HIV but not AIDS.
If you have AIDS you also have HIV.
Some people will only be diagnosed with HIV.
Others will get diagnosed with AIDS because they failed to get tested or didn't want to get tested, or they thought they were in a monogamous relationship so they never needed to until they found out too late.
AIDS will always be around. Just because there is medication out there for HIV, people will still test AIDS at some point.

April 17, 2024
A myHIVteam Member

I’m not gonna get stuck on the mindset of AIDs vs HIV - it can be trivial and complex and agree with Paris - I live with a life long chronic illness! In my opinion the term AIDs should be retired

April 14, 2024 (edited)
A myHIVteam Member

I hate this very ugly term when people say oh he or she has AIDs when in reality its a perfectly healthy individual controlling their illness living a normal healthy life. It has so much negative stigma associated with it. I would like to see it removed and replaced with Chronic Uncontrolled HIV.

April 15, 2024
A myHIVteam Member

Hmm, I always thought full blown meant we were feeling gassy... :-)

April 20, 2024 (edited)

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