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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myHIVteam Member asked a question 💭
Athens, GA

Someone that is negative asked me a question I didn't know how to answer. Are there folks that stay positive for life or does it all end with AIDS?

asking for a friend

February 9, 2024
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Answer Summary

Members provided reassurance that not everyone with HIV progresses to AIDS, explaining that with consistent antiretroviral therapy and... Read more

Members provided reassurance that not everyone with HIV progresses to AIDS, explaining that with consistent antiretroviral therapy and maintaining a CD4 count above 200, many people live full, healthy lives without ever reaching an AIDS diagnosis. Several members shared personal experiences of having been diagnosed with AIDS due to low CD4 counts or opportunistic infections but recovering to undetectable status through medication adherence, with some noting their doctors now use terms like "chronic HIV" or "advanced HIV" instead of "AIDS" to reflect the effectiveness of modern treatments. A recurring theme was that outcomes vary based on individual factors like genetics, how long someone has been positive, access to medications, and self-care, with members emphasizing that taking medications consistently, staying up to date on vaccines, and monitoring viral load are key to preventing progression and living a long life.

A myHIVteam Member

When I went through chemotherapy for lymphoma 20 yrs ago, I technically fell into what the CDC classifies as AIDS. My t-cells bottomed out to 0. Although since than my numbers have rebounded. So technically I have AIDS diagnosis but all my numbers are pre cancer levels when I was considered HIV+.

February 13, 2024
A myHIVteam Member

Ernie is correct, not everybody who is HIV positive eventually progresses to AIDS. Some people never have any side effects. Some people don't even take medications but other people progress to AIDS and die from complications associated to AIDS. It's an individual situation .
as the years progress, with inflammation on our internal organs and our immune system fighting the virus on a 24 hour basis ....it depletes our defenses, which is why cancer is the number one cause of death among H IV Patients.

February 9, 2024 (edited)
A myHIVteam Member

From what I understand as long as you are taking arvs and your cd 4 count is higher then 200 you are not considered to have aids. My doctor tells me he doesn’t use the aids term because arvs are so effective now a days. That almost everyone who takes there meds will not get to the point where your immune system can no longer be controlled . His favorite line to me is take your damm pill and you will be fine 🥹

February 9, 2024
A myHIVteam Member

I don't think it happens for everyone not everybody gets opportunist to infections. Some people get the luxury of staying positive what others dropping into aids.

February 9, 2024
A myHIVteam Member

To be considered as having AIDS you have to have a CD4 count of less than 200 or have acquired an opportunistic infection, which can happen when the CD4 count is low and your immune system is severely compromised (although not everybody does pick up such an infection even with their low count).
Nowadays we take ARVs to stop our CD4 count going into such decline so fortunately there aren’t the casualties of years ago. So someone can live a full life, taking their pills, and never reach this point, dying from another illness which can be totally unrelated.

February 9, 2024 (edited)

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