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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myHIVteam Member asked a question 💭
Geneva, IL

For those long-termers , what would you tell your fellow HIV team member, who is recently infected or only a couple years into it?

March 22, 2023 (edited)
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Answer Summary

Long-term survivors shared heartfelt advice for newly diagnosed members navigating life with HIV, emphasizing that today's medications work... Read more

Long-term survivors shared heartfelt advice for newly diagnosed members navigating life with HIV, emphasizing that today's medications work remarkably well when taken consistently, allowing people to live long, healthy lives and often die from something entirely unrelated. Many members encouraged staying vigilant about symptoms and side effects while maintaining open communication with healthcare providers, and stressed the importance of finding local HIV services, specialist care, and support groups where connecting with others who truly understand can be priceless. A recurring theme was the power of self-forgiveness, taking each day one step at a time, and remembering that an HIV diagnosis is no longer a death sentence but rather a manageable condition that still allows for a full, joyful life.

A myHIVteam Member

I was only diagnosed 6 months ago, so cannot speak to long term experience. I just want to say that at first I felt my life was over. Then I found this site and read stories of people who have been positive for many years and are living healthy and normal lives. That helped take away a lot of my fear and anxiety. I’m on medication with no side effects, and am undetectable now, so I’m hopeful that I will be able to live a normal life for years to come. To all of you long term survivors, please keep sharing your stories. They help those of us who are new to this so much.

March 22, 2023
A myHIVteam Member

In 2006, I was 56 years old and diagnosed with AIDS. My CD4 count in the upper 100s and a VL above 2 million. I had been symptom free up until this point. I was started on Atripla and tolerated it well. A couple of years ago my doctor switched me to Biktarvy…which I have been tolerating well too. I’ve only missed doses a handful of times since then. I’m turning 68 this year, and haven’t had any health issues associated with the HIV virus. Actually, if I had to pick a pathology, HIV+ would be the one. I couldn’t be happier with my health care providers and love my doctor. I have been truly blessed and am grateful.

The meds work…if you take them. You’ll most likely live a long life and die from something else lol.

March 22, 2023
A myHIVteam Member

Forgive yourself. That's the first thing we do. Feel guilty. Find support. Talk to someone if possible. Make friends in this group or wherever. It's not the end of the world. Live.

May 7, 2023
A myHIVteam Member

I would say do some research about the HIV services in your area link up with HIV specialist find as much information as you can and find a HIV support group in your area it helps communicating with people who are going through the same thing that you are ( priceless)

March 23, 2023
A myHIVteam Member

I would tell them, it's going to be ok. You have to go through the tests and you have to take the meds, but in the long run, it is all going to be ok. You'll be able to live a 'normal' life, just take it a day at a time.

March 23, 2023

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