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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Is It Living With HIV?

How Is It Living With HIV?

Whether it be a family member, friend , coworker.....etc, what would you tell someone who is interested in knowing,.... how it feels like living with HIV?

A myHIVteam Member said:

Having lived with the knowledge that I have HIV since I turned 20, I have had 26 years to accept what I have. I don’t see it as me living with HIV, but HIV piggy backing on me for the entertaining ride that has been my life!

After the woman I contracted HIV from left me for another guy (a few months after I had come out of hospital having contracted TB Meningitis) I felt able to disclose my status to close friends, women I dated and now just about anybody I feel it will be useful knowledge for.

The statement from the World Health Organisation that HIV can’t be transmitted by a person who has been on ARV meds and UD for >6 months makes the conversation with a new partner easier, and the first girlfriend I told is now my wife 🥰

posted 2 months ago
A myHIVteam Member said:

I like to think that HIV lives with me! I am in control and in charge of this life….

posted 2 months ago
A myHIVteam Member said:

I would say that the hardest thing about living with HIV is dealing with the stereotyping and the stigma and the way society still sees us as being punished by God. Sadly we are still outcasts even in 2021, or at least that is how I feel.

posted 2 months ago
A myHIVteam Member said:

I would say, Tough… we all want to say what people want to hear. Oh, it’s good or ok or even great. Honestly it’s tough as HELL. Always having this on your shoulder wondering will it get worst, good, or better. Always scared of being ridiculed as being dirty, contagious, etc… I would then ask them how would you feel if you where infected? I guarantee they would say, scared and concerned. Hope this helps.

posted 2 months ago
A myHIVteam Member said:

Well for me and I've only been diagnosed a few months at first it was difficult not from being sick I never was but just the potential stigma got on meds got to undetectable really quick and cd4 up so that eased my mind so for me nothing has really changed accept now I have huge secret but it's not that bad

posted 2 months ago
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