Do You Currently Use Services From Your AIDS Service Organization: | myHIVteam

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Do You Currently Use Services From Your AIDS Service Organization:
A myHIVteam Member asked a question 💭

As a long term survivor I depended heavily upon the ASO where I was living for support living with HIV. I have lived with HIV since 1987 and up to 2008 they were extremely important in my life for support in every way. ASO's were and still are crucial for the AIDS community, especially those needing help with meds, food, housing and case management. But with limited Federal monies usually coming from the Department of Health and Ryan White, agencies need to rely on agency generated grants… read more

posted February 6, 2020
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A myHIVteam Member

I get help with ADAP, I get help with housing when I need it, help with electric when I need it, help with paying the phone when i need it. My AIDS services also helps with food and new clothing. The case manager I have went to the store with me and had $200 on hand for me to spend on things I needed. So I got a winter coat that I needed, some socks, underwear, a hoodie. I could have got more if I didn't get the more expensive Carhart jacket but I know those are warm coats. They also supply me with a multivitamin, gas cards to my doctors appointments.

posted February 16, 2020
A myHIVteam Member

I live on the Big Island in Hawaii. The Hawaii Island HIV/ AIDS Foundation (HIHAF) provides all HIV related case management services on my island. Here in Hawaii benefits are superb with no waiting lists and almost instant approval plus a liberal Ryan White policy that anyone meeting 400% of poverty or less is eligible - Hawaii has a much higher poverty level than on the mainland and is $58,720 for 2020 (only $51,040 on the mainland for the 48 contigious states).

From Ryan White and other state funding I get all my meds payed for by HDAP (I have Humana insurance and HDAP acts as secondary insurance paying for all deductibles plus free home delivery via UPS and CVS Mailorder). I also get their H-Cobra which pays for the monthly Humana insurance. The HDAP formulary is very progressive so it not only pays for my HIV meds but also includes my mental health, cholesteral and Prolia injectables for osteoporosis. In addition my agency has a food pantry I can go to it once a week and get any kind of dried or canned goods I want. Staff with no turnovers is extremely friendly and always has time for its clients - required to meet twice a year. PS: I'm lucky to have my own home thanks to my family who bought it for me, but for those who don't have housing HIHAF also has a housing coordinator, health insurance coordinator and an onsite STD staff from the Health Dept.

posted February 6, 2020 (edited)
A myHIVteam Member

I haven’t but only because I haven’t yet had to. My insurance is good and I’m fully covered. Yet it’s comforting to know these services are available and that do many benefit from them. God bless their work.

posted February 6, 2020
A myHIVteam Member

We ate fortunate here in St. Louis to have a great one, Effort ForAIDS. Great case managers, a medical center, pharmacy, food pantry. They can connect those in need with housing, utility bills, food outreach, doorways. They connected me to a grant from the city health department for dental. There have been some changes in management recently but i am not certain on how that has affected services. As you mentioned they rely heavily on monies from the sources mentioned which does fluctuate; and can have an impact on services available i.e. how much money is available for dental per year. Usually it is $1500 but that will change from year to year. Thats my two cents. Thanks for reading❤️ no auto-correct ☹️

posted February 6, 2020 (edited)
A myHIVteam Member

Dallas has really good services they cover several counties. The thing about nonprofits is it's supply and demand. An ASO success is determined by not just money but also the number of people in need for the service. Over the years I have seen organizations just get eaten up because they can't get funding or clients this is a problem

posted February 6, 2020

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