Have You Had People Ask You If You Are Really HIV Because You Look So Healthy? | myHIVteam

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Have You Had People Ask You If You Are Really HIV Because You Look So Healthy?
A myHIVteam Member asked a question 💭

I have lived with HIV for 31 years, almost half my life. As a long term survivor one has seen the worse of the disease from the very beginning. I looked like I was sick which I was in the 90's and people accepted it because AIDS was so prevalent. I was lucky to get on a trial for Crixivan in 1996 which saved my life. From then on I became stronger as more medications came out and more known about the illness I have adhered to my med schedule, monitored regularly by doctors and specialists… read more

posted December 28, 2018
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A myHIVteam Member

I've had issues like that as well my grandmother said I thought you were dead since that day I have not spoken to her and now she is passed away I hate that that happens live in HIV since 1989 and I survived thank God for medications that came out in 1996 however I have issues such as nausea and body pain still to this day I get through it I go to work everyday and I feel like I look pretty good God be with you all that are positive in Christ amen

posted December 28, 2018
A myHIVteam Member

I have been positive since 1986 and have had my ups and downs with HIV, as you have. I do get that "you don't look sick" occasionally. Most people are aware this day in age of the accomplishments that have been made for us. I am happy to hear you are well.

posted December 28, 2018
A myHIVteam Member

@A myHIVteam Member, i think your one foxy Lady and you look great, HIV and Cancer you've held up very nice

posted December 28, 2018
A myHIVteam Member

Third, I just got reevaluated by PRUDENTIAL. I became disabled in 2012. My weight fluctuates more than 10% regularly. That was determined to be wasting syndrome while I lived in Texas and that alone met the burden to be 100% disabled. There is so much more than weight in my opinion. Like you there are days when I wake up and going pee is just a real chore and takes a lot of my energy. I understand your situation. I hope things do improve for you.

posted December 28, 2018
A myHIVteam Member

Sometimes with my meds feel my life has been drained away. Life is sometimes not enjoyable, I sould be happy be alive.

posted December 28, 2018

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