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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Kind Of Treatment Does Everyone Do For Neuropathy In The Feet?

What Kind Of Treatment Does Everyone Do For Neuropathy In The Feet?

The pain in my feet is increasing each day. Over the past year it was manageable without taking Neurotin but tonight I started on it to try and get some relief.

A myHIVteam Member said:

Thanks for the reply, my neuropathy was caused by the Ampaterician B that I had to have for cryptococcal meningitis. I was on extremely hight IV doses for 17 days in the hospital. I took my gabapentin for the first time last night simply because I was hurting so bad. I do not like to take it because of all the new warnings about the effects it has on the synapses in the brain, esp because I have brain fog just from the crypto and brain biopsies that they performed when I was in the hospital. Hopefully someone will come up with something that is safer for everyone who suffers from this terrible hurt.

posted over 4 years ago
A myHIVteam Member said:

@justme2dayiv'e ben on neuropathy forover 35 years,at first on was on percodans and thenpercosets butnreallycouldntcontrol it until i got off of narcotics and got on gabapentin that controls it, i also have gout in both feet i take a differant pill for the gout

posted over 4 years ago
A myHIVteam Member said:

Im so sorry to read this- it is not qeasy to get into, the C men...it was very debilitating amd I too was in icu and coma for three and a half weeks- when I woke up (miraculously), the staff told me seven different life threatening ailments were ravaging my body, c men being a major contributing factor in my plight. I was lucky to have gotten off the fluconazole, of course with weening. It has done damage, but I am alive and still undetectable, and c men free. By the grace of God!

posted over 4 years ago
A myHIVteam Member said:

@A myHIVteam Member, from what I understand it is rarely seen or it never actually gets diagnosed due to the patients passing away before the diagnosis. I was on Ampaterician B, I.V. for almost 2 weeks just to get it killed out then remained on some other antibiotics along with the Fluconozole which my I.D. doctor told me that I would be on it the rest of my life. C. Men had actually invaded my bones, blood, and brain by the time I was diagnosed in ICU with a brain herniation. All I know is C Man is something I wouldn't wish on anyone, even though I do not remember much about everything while being treated but my life is never going to be the same as before.

posted over 4 years ago
A myHIVteam Member said:

Just a question- I have recently been aprised that C meningitis has smitten several with the virus... Is this a very common phase in the sequence of ailments associated with HIV? I had it, and was on fluconazole Torvalds very longtime. Has 7 or 8 lumbar puncture procedures to monitor the alleviation, and eventually erradication, of C men in...

posted over 4 years ago
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