35 Years Living With HIV This Month, Not Sure How To Feel About It: | myHIVteam

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35 Years Living With HIV This Month, Not Sure How To Feel About It:
A myHIVteam Member asked a question 💭

I have been living with this disease for half my life. I have overcome the odds in defeating death around five times. But I have lost much living with HIV. My career, family, relationships, even friends. Not to mention the tremendous loss I experienced in the 80's and 90's leaving me to live with continued grief and survivor's guilt. Just two months ago I lost my significant other, long distance buddy, of 13 years also a long term survivor who was my touchstone and I his. HIs loss has… read more

posted October 9, 2021
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A myHIVteam Member

Thank you Jeff and everyone else. As an AIDS Advocate I stand with you Jeff. I only have been through this for 28 years but started at the age of 17 within my community, because I was out at the age of seven as an openly gay boy .... So I understand your grief and your disappointment but I must disagree with you in the sense of hope. I know you are aware that there is always hope and for that you fundraise and I applaud you but never fall short in our responsibility of leading the rest of the world and our younger generation to a hopeful future despite our personal setbacks from the 1970s 80s and 90s .. the new generation will go forward with hope and love in their hearts..... and this they will get from us. Much love Jeff.. see you in the halls of MyHiVTeam💋💙💚💛🧡❤

posted October 12, 2021 (edited)
A myHIVteam Member

I can truly relate to you story, I’ve been positive since 1984. Over half of my life now. The last few yrs have been medically challenging and on going. I’m the last one of my original gay family still here.

posted October 12, 2021
A myHIVteam Member

Thank you for your caring responses. I feel I should paint a more rosy picture about being a Long Term Survivor, but my truth is the reality of how I feel now physically and mentally. However I do prescribe to the philosophy of taking one day at a time. Thanks again, and I'm glad we can take this journey together, and learn from everyone's experiences.

posted October 11, 2021
A myHIVteam Member

I'm sorry for the loss of your partner I'm sure that he's very proud of you. I'm sure that he would want you to share your experience and wisdom with the newly diagnosed cases. These new people only hear stories you lived through it and survived. I was diagnosed in 1992 I faced a little of the stigma but not like the people in the 70s and 80's you are the best resource that this site has. What you have experienced over the years is inspiring and golden.

posted October 9, 2021
A myHIVteam Member

Jeff,
Thank you for your honesty and authenticity. I too, have been living with HIV for over half my life and find myself questioning what the future holds. Depression plays a significant role in my life. The only way I've been able to cope lately is to do my best to create joy in the lives of others LTS and the newly diagnosed. It's my small part in giving back. I thank you for all you have done in opening up about being a LTS and the trials and tribulations you go through daily. You are an inspiration in my life and I'm always grateful to see your posts.
Love4
PJ

posted October 9, 2021

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